I have a considerable amount of pain when it comes to my RA. I guess if I had to “measure” it, I would call it, on average, moderate. And in my world, the solution for that has been prednisone.
I have been off prednisone for about two weeks now, and my pain levels have increased considerably. Lately, my knees feel like glass orbs that are about to break into a million pieces at any given moment. Not a good feeling, I assure you.
Working out has also become difficult and painful, which is frustrating since I’ve been making a concentrated effort to work out more and stay active, another post which you can read from me this month.
I have enough pain, as it is nearly almost always present. It isn’t necessarily debilitating all the time, but it’s always there to remind me that things are not the way they should be, necessarily.
When the pain is at its worst, or back after a period of relatively little pain, I tend to get very cranky and emotional. If it’s so bad, I can’t really function to any measurable degree. While that’s rare, there’s not much I can do for it but ride the wave until things calm down again.
And I’m probably not the most cheery and upbeat person to be around when I am having a significant amount of pain.
The everyday aches and pains I cope with as best I can, usually silently. But if the pain gets too bad, it’s hard to keep quiet about it.
I recently had a conversation with a friend who was telling me about how her rheumatologist prescribes her pain medication. This is not the first time I’ve heard this. But neither my rheumatologist in Michigan, nor my new rheumatologist in New York, have offered me either prescriptions for pain medication – other than steroids – or a referral to a pain management specialist.
I don’t know why this is since both doctors are totally aware that I have pain. And I do think they would both agree that living with intense pain when there is something to possibly remedy it is silly. So why no pain management? I don’t really know.
I would love to find something other than steroids to treat my pain. That would be revolutionary for my life.
I am not sure where my doctors are coming from in this regard, but my experience with pain management has been basically non-existent for the six years that I have been sick.
I grit my teeth and move on with my life as best as I can.
I would love to hear others’ experiences with pain management, both those who have had it and those who have not.
And if you’re interested in pain management and you want to learn more information, check out the Beginner’s Guide to Pain Management.
Published On: March 19, 2014