Lupus Is As Lupus Does: Some Books To Help You Get Through It

Leslie Rott Health Guide
  • While there are definite similarities between Lupus and Rheumatoid Arthritis, most people have one or the other, not both like me.  May happens to be both Lupus and Rheumatoid Arthritis awareness month, so this post pays a nod to books about Lupus. 


    This is not to say that there aren’t great books about Rheumatoid Arthritis out there, or that there aren’t general books on autoimmune disease, but this post will highlight books specifically dealing with lupus, and these happen to be some of my personal favorites:

    Despite Lupus by Sara Gorman


    Despite Lupus is a great book by blogger and pillfold/ pill pouch creator Sara Gorman.  It’s like the holy grail of lupus books that is written by a patient.  While this book shares Sara’s own experiences with the disease, it also provides some very useful information and tips that can be used by readers. 

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    How Can You NOT Laugh at a Time Like This by Carla Ulbrich


    This book is written more like blog posts with short, pithy chapters.  It is also written in the characteristic style of humorist and songwriter Carla Ulbrich.  One thing I don’t love about this book is that it sort of comes across as preachy when discussing alternative therapies, but if you don’t mind that, and you’re looking for something to make you laugh, this book is for you.


    The First Year – Lupus: An Essential Guide for the Newly Diagnosed by Nancy C. Hanger and Andrea Schneebaum


    I think books in the first year series are really wonderful, not only if you are newly diagnosed, but as a reference.  They are written in a style that is easy to understand, and the lupus version is no exception.  I highly suggest that even if you are not newly diagnosed that you keep this book on your shelf, and if you are newly diagnosed, this is a must.    


    Lupus Q&A: Everything You Need to Know by Robert Lahita and Robert Phillips


    This book is pretty basic, but is presented in a question and answer format, which makes it easy to find what you are looking for.  It’s not really a book that you need to read cover-to-cover, although I did, but is a great resource when you have a specific question about lupus.


    The Lupus Book by Daniel J. Wallace


    This book is rather intense and very clinical.  It is a good resource to have if you are ever interested in the more medical aspects of the disease, but it’s personally not my go to.  I don’t just pull it off the shelf for the fun of it, like I do with Despite Lupus and the First Year book.  However, I do think it is an important book for any Lupus patient to have. 


    The Lupus Encyclopedia by Donald E. Thomas Jr.


    This book won’t be out until June but it promises to be a treasure trove of information about Lupus. 


    Unexpected Blessings by Roxanne Black


    This book is a quick read, but it is artfully and thoughtfully written.  It is more of strictly a personal narrative about Lupus, and is probably one of the best out there.  It was written by Roxanne Black, who is the Founder and Executive Director of Friends’ Health Connection.


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    Please note that in this post I have tried to provide the link to the most current edition of the book.  However, in many cases, the version that I am reviewing is an earlier version than the most current one.  This should not be a big issue, but just in case, I’m adding that disclaimer.


    And to be clear, this list is not exhaustive.  This is a sampling of the books that I have on my shelves about Lupus.  There are some books that I have read that I have not listed here, for one reason or another.  I really tried to consider books that you will want to read more than once, and books that are great for reference, rather than something that you might just pick up on a whim, read, and never turn to again.  

Published On: June 12, 2014