I was wondering if anyone else has a lot of stiffness in the evenings? Sometimes it seems worse than the stiffness in the morning.
It can be pretty normal to have this at the end of the day, depending on your level of activity. you may want to consider taking some time, even half an hour, to lie down with some painkillers before or after dinner, just to give yourself a break. If you're really stiff and sore most of the time, check out my post on the Spoon Theory for tips on how to manage your energy. You may also want to go back to your rheumatologist to talk about treatment options, in case the evening stiffness is a sign that your RA is not well controlled.
Thank you for your advice and wisdom!
I'll try doing as you suggest... laying down and generally taking it easy for a while in the late afternoon/early evening. I know that I really need to change my mindset about resting. I still have to give myself "permission" to take care of myself.... especially since I'd rather be doing anything else.
I've actually read you spoon theory post, and refer back to it OFTEN! I go back and read it every time I over do it... many times a week. Hard headed.
I agree with you about going back to see the doctor. I have an appointment next month. I had really hoped to be a lot better after a year. Now I'm just hoping for a little normalcy.
Thanks again Lene. You are so appreciated!
I hear you. I may write all wise, but when it comes to implementing working within my limits, I... well, the only way to describe it is to say that I suck. There are so many things that need to get done and so many things I want to do and my body has decided opinions about when I should stop, which is usually before I'm ready to stop. I will say this, though. I recently learned the truth of working within your limits in a way that wasn't paying for doing too much and sitting around being frustrated because I was hurting. My horizontal filing cabinet (a.k.a. my dining room table) had been looking particularly mountainous for a while, making me tired every time I looked at it. Then I decided to deal with it five minutes a day and absolutely no longer. The rule behind that reason was (or so I told myself) because I had a lot of other things to do so I could only spare five minutes instead of making it about something negative like my ability level. And it took me about 10 days to clear the table, but I was really surprised by how quickly the five minutes a day showed in the piles getting lower. Five minutes a day was easy, nothing I had to gear myself up to do (because cleaning is boring) and best of all, I didn't end up having to sit still for four days healing afterwards. And this lesson I remember. I'm really good at repressing all the times I've had to sit still because of doing too much, but this was a positive example. It's still a work in progress, but I'm a step further than I was a couple of months ago...
let me know how goes at the doctors?
Had to laugh when you said you suck at the whole working within your limits thing.
I really like the way you turned a negative into a positive! It really IS a lot about mindset! I think it becomes way too easy to see the "I can'ts" instead of the "this is how I cans" (without paying for it later). Food for thought. And yes, 5 minutes a day is so much better than slogging through to get it done then being chained to the couch for days afterward.
Also, I loved your comment about RA having opinions. Funny because it's so true!
I think my sense of humor is coming back....
The first sign of getting better is often your sense of humour coming back - even the really dark type of humour.
And yes. RA definitely has opinions. I spend my life arguing with the thing...
And one of these days, it might even let us WIN one of those arguments!
I too experience it. And it is usually after I have actually sat down for a bit. I, like most women work all day go home and work all evening with supper, kids and housework. If I sit and watch tv or read I will feel it when I get up. Down time can hurt too. My new spoon theory technique is to cook about 4 meals on Sunday and package them up to alieviate some of the weekday work, it allows more me time after work so I can sit on the porch or take a walk. It really doesn't take too much time to cook alot of meals either and I get more me time in the end. This week I had a chicken salad made, grilled hotdogs, brats and chicken, made sloppy joes and put a roast in the crockpot. I also made a pot of beans and ham. It made my week so much easier, I walked on the treadmill yesterday, the day before I sat on the porch swing and watched my daughter play basketball and Monday I played with the grandbaby for a little while. It really has bought me some time for me, I suggest it for anyone that works the way most of us do I have gotten twice the extra time in the evening than I had before and only put in about 2 good hours of cook time. Awesome trade off.
Thanks for the suggestion! Makes sense to do that on a weekly basis instead of just when the mood strikes.
Yes, that's exactly what happens to me. Once I sit down, I'm pretty much done. When I get up, I wind up walking like Red Fox from Sanford & Son.
How are your shoulders doing?
Fred Sanford, that's funny and true. My shoulders are quiet for the time being. My rheumy has been injecting a mix of lidocaine and something else in them for me and it has given me some peace. He also gave me voltaren cream and patches which takes the edge off and gets me through the day I've never had a cream that actually gives me a buzz, thanks for asking.
Hey, that's great!! Glad you're finally getting some relief!!!
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