When you feel like you can't do it anymore...

By YBS21 Monday, January 18, 2010

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What do you do when you're just tired? That's right, just plain sick of being sick! Yeah, I know there are people worse off in life. Yeah, I know things could be a lot more terrible and grim. Yeah, I could be in a wheelchair. In fact, I could be dead, right?

I have these days, in fact, I'm having one right now. How do you deal with this? Personally, I have to pray...LOTS! There is something inexplicably calming of knowing that someone truly understands what I'm going through. That I can pray to my God knowing that I will not be judged but rather comprehended...yeah, that's amazing. There's also something unique about prayer for myself that is ridiculously refreshing...the reply to my prayers is quite. Yes, it's not someone trying to make me feel better but failing miserably. It's not someone telling me things could be worse. It means not having to sit through someone's speech of how I need to just hang on...as if I didn't know that already.

Don't take me wrong. I love my friends and my family. I NEED to be reminded that I'm blessed and that I have a wonderful life. However, during these days that I just can't go on or at least don't feel like I can, only the one above helps me and this is a fact of my life that I cannot be blinded to. To acknowledge this is in it self a blessing that reminds me that I will be OKAY...

Love,

Too Young to Be Sick

Comments (5) | Add comment

Ratnapriya

1/19/10 1:12am

Yes if it is any comfort for you, we the RA club members all have those burnt out totally exhausted days. Days when you do not feel like creeping out of bed but have to since there could be something important waiting for you at your university/workplace/home.

Many creeps out of their bed, drags themselves to do those important things and comes back miserable that too all with a smiling face. I therefore prefer to call ourselves members of the "Brave heart club". So brace yourself up to say No to your illness that is "No it cannot take your life away"

Ratnapriya

unipat

1/19/10 6:26pm

You said it pray. Quite meditation and soothing music do it for me. There was a time I just gave into it and then the depression would set in. All of us have a tough road ahead of us and how we handle it make the dealing with RA possible. Thank you for reminding me that only our heavenly Father can listen to us and still make us feel like we unloaded.

Praise God!!!

Laura

1/20/10 12:55pm

Hello,

It sounds like you already know the answer to the problem. Medical science can do a lot and I thank God for Science and our doctors and medications, but the real healer is our God and his son Jesus. If you have Jesus, you have Hope. Without hope, there isn't anything else to look forward to. He is the healer, the comforter, counselor. Sounds like you already know these things and are already seeking His great comfort. Don't give up hope and ask God to guide you to the right doctor, maybe new medications? There is somehting out there for you! I think most people on here can tell you that there are really bad days, but then there are great days. Good luck and stay in prayer!

God Bless!

Alexandra1214

1/21/10 11:43am

No family, nor friends, nor anyone who has not been living with RA can ever understand ... BUT we Can ... so you come on in and pull up a chair .. we will WILL you back into the world ....

We ALL have this in our lives .... don't we .... The first few minutes of each and every day ... before we step out of bed and get on with life ... we actually don't hurt ... this might have all been a dream and we don't really have RA .... then we stretch and step onto the floor ... REALITY hits ....

We ALL have the feeling that WE ARE SICK AND TIRED OF BEING SICK AND TIRED ... we are SICK AND TIRED OF PEOPLE THINKING WE ARE JUST MAKING UP OUR ACHES AND PAINS ... we are SICK AND TIRED ... Period .....

Then my cat, Prince Andrew will come over and start looking at me ... urging me to pet him as he is purrrring up a storm .... and the puppies downstairs will start chirping up .. they are hungry and I must get on with life ...

I write ... I paint (watercolor) ... I take care of my animals ... I get in contact with my fellow friends living wtih RA .... I push myself ... and pretend ... I Pray constantly for many things ... patience with myself for not being able to do what I used to do ... Pray for the person/s who will invent the perfect pill to ease our pain ... and just Pray each and ever day!!

You know how people will say ... you are either a person who believes the Glass is half full (optimist) or the Glass is half empty (Pessimist) .... but I have a third one you might like to use .... Somedays, I barely have The Glass!! (living with RA)

Hang in there .... this too shall pass ...

JoZ

Lene Andersen, Health Guide

1/21/10 8:01pm

I take a switsh. Which essentially means that I have a self-pity party. However, I taught myself that although it is okay to feel sorry for myself every now and again, I shouldn't wallow in it and that's why I take a swish.

I'm not a big fan of comparing yourself to people who are worse off - compared to a child starving to death in Darfur or the earthquake victims in Haiti, we are all sitting pretty. Sure, it's important to maintain perspective, but it's also important to not invalidate your feelings - it just makes you feel bad about feeling bad. Within the context of your life, you are experiencing real losses compared to the health you have before and it's important to process the feelings of grief associated with that. Without mourning it, you can't let it go and move on. I would recommend seeing a counselor - those who specialize in cognitive therapy can be especially helpful when you're dealing with a chronic illness

And you're right. You're too young to be sick. I got JRA when I was four (over 40 years ago) and spent a long time being really angry. I still am at times, usually when I can't do something I want to do. But I want you to know that RA won't stop you. It will derail you at times, but keep chasing your dreams. It might take you longer to get there than other people, but sometimes, that can make the journey more interesting.

When you feel like you can't do it anymore...

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