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R/A
Susan Coughlin
Tuesday, May 19, 2009 at 07:05 AMre: R/A
luvsummer
Tuesday, May 19, 2009 at 07:49 PMIf you don't mind me asking, howlong have you been taking the humria shots? I'm so worried about my son right now, they are doing a colonoscopy on Friday. We wil know then at least whats going on in that area. I'm afraid to say just how long its been that I've had my blood drawn. Its been years but I had no insurance so he just didn't treat me how he should have.I have skipped my prednisone its not good, I agree. Thats why I want off the prednisone.
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Meds
Angela53510
Thursday, May 21, 2009 at 12:26 PMAsk for Kineret. It has no side effects and clears through the kidneys, and won't even affect your liver esp. if you are on Methx. I have been on it for 4 years, and it is wonderful. It is a hassle, because it is a daily injection, and I had some site injection reactions (bad itching) the first year, which is normal, but literally I have had no problems, and it doesn't affect the eyes either.
It is not prescribed very often, because it was classed as not effective. However, this is because they gave it mostly to med resistant people, who had tried everything else, and nothing worked for them. (So why they thought this didn't work, I don't know!)
The only drawback for me, is travelling. If I go anywhere, I have to pack a small portable fridge, with all my needles. I have a DC adaptor, so it isn't bad with a car, but it is quite a pain on a plane. (punny!) None-the-less, this year I have travelled 4 times across North America to see my kids and holiday, and just carried the thing with me.
The other draw back is expense. I have two really good drug plans, and although it is $1500 a month, I only pay $8.00 between the two plans. So that works well for me. It is worth it not to be in pain, and the deformities getting worse.
Talk to your rheumatologist about this - be prepared for pain at first from injections - I don't even feel it any more - The pain of the injection is so much less than any flare!
Angie
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Untitled Comment
Lene Andersen
Tuesday, May 26, 2009 at 11:09 AMA new doctor may also suggest one of the Biologics. Although they do have side effects, not all people get all the side effects, so it's possible that they wouldn't affect your eyes. Biologics can give you your life back I started taking Enbrel four years ago (switched to Humira two years ago) and they have been a godsend for me. I switched medications due to Enbrel aggravating my fibromyalgia, but other than that, I've had manageable side effects. We all do the cost-benefit analysis when thinking about taking a new drug, but I would encourage you to ask more questions of your doctor about these drugs and their side effects. You may also wish to have a conversation with an ophthalmologist, to get the opinion of the person who is in charge of taking care of your eyes. It's possible that with close monitoring, you would be able to safely take the drugs.
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Hi Nice to meet you
Melinda Winner
Tuesday, June 16, 2009 at 04:34 PMHi, I also got dx in my 20's with RA. I was also on prednisone for years, it made me become a diabetic, When I stopped, it went away, I am on Embrel now and it has caused dry eye very badly. However, it has been working for me. I hope you find something you can take to get relief. I did remicade for about two years also it worked very well at first. Did you gain weight or bloat up on the prednisone ? That was another problem I had with it as well as rashes. I will pray for you. I hope things get better.
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Hi, I have R/A dignosed in 1999 I take all the meds that you do plus the Humria shots none of theses meds. effect my eyes although I do not like the story I just read on Humria I 'll print and ask my doc. I've been on prednisone for a very log time but, a very low dose which seems to do quite well. I still have bad flare ups but nothing to what it's like not taking theses meds. I stopped them to see if they really worked and trust me they do if you think you feel bad now try going without them thats pain. The real trick to R/A is a damn good DOCOTOR, and you'll know when you find one they will watch you close and they will do blood work every 3 months and check everything they can check at each return and they are there anytime you call or need them ,That IS YOU MAIN SUCCESS TO R/A.(A DOCTOR WHO CARES).Have your eyes checked every six months and your blood work every 3 months,and if you R/A doc. does not do this for you then find one who knows what they are doing it is very inportant to have this done. Good luck and I wish you and your son the best.