Thursday, May 31, 2012

Conective tissue Disease

By jacabeans Thursday, August 21, 2008

Hi just back fron RA clinic i have Conective tissue disease, its like waiting on a bus  its no decided what route it wants to take, knowing my luck two will come along at the one time?any one else had this? i have decieded not to take the medication for now and try some alternitive med's i go back in 3 months if its progressed by then i'll consider the meds (Hydoxychioroquine).

8/21/08 4:06pm

hi jacabeans....connective tissue disease?? what the hell is that? when you look it up on the 'net, it's a vague definition and it kinda lumps a bunch of stuff together.  oh boy.  i'd want to know more..

8/22/08 2:15pm

they told me its uncomon and they had no leaflets on it to look it up on net?(they just wanted me out the consulting room)i'm same as you cant find much about it, been trailing the net all day nothing i'll keep looking, if i find anything i'll let you know,they made me feel like it was a bit of everything,Hubby turned up to take me to clinic. think he was hoping they'd mention his akward movements and say oh poor lamb whats up with your back,peace to look up more net he's gone to thunder in the glen on the bike.so me and my Bitza will have peace to get to know one and other.

8/22/08 6:41pm

haha...that's sad that your hubby is only doing it to benefit himself.  hey wait, that sounds like my man!!  well, i have to go easy on him.  he's doing  better.  still refuses to acknowledge it, but is more generous with the neck rubs without me asking. 

well, it's friday. 

connective tissue disease.  that's crazy.  i'd go somewhere else. but i noticed you're in britain so you're kinda limited with choices, no?  go to someone else.  do you always have to go to a clinic or is there private practice there?  well, cheers! hope you're feeling good today! ~Desiree

Anonymous
PEGGY
5/ 3/10 7:58pm

Well your not a lone, I have RA connective tissue only took several years to find it. I'm seeing my RA doc Wednesday 6 2010 again I have been to so many doc's and hospitals not much information out there. Going to keep looking, I have a really good friend that is a PA and she says that autoimmune disease are years of abuse of our bodies that is for sure on my part. But she mention to do a complete body cleanse and to start and stay on a diet of fresh raw veggies (green) and fruits no red meats or chicken only fish not farmed, add kelp to my diet too. Let me know what you find out.

 

8/23/08 6:37pm

Hi Jacabean,

 Conective tissue disease, must say I have never heard of it either. Hope it decides to take the "goes away forever " bus. Thanks for the response earlier in the week about my situation at work (and yes it does feel good to know my employer values me).

  Also I am feeling much less depressed. My counselor had me write a list of my sucesses in life (as I tend to have my failures memorized and written in stone...) and that helped. Made me feel a little foolish for dwelling on my failures, so I am going to break that habit!

  wishing you the best.  Mel

8/23/08 6:37pm

Hi Jacabean,

 Conective tissue disease, must say I have never heard of it either. Hope it decides to take the "goes away forever " bus. Thanks for the response earlier in the week about my situation at work (and yes it does feel good to know my employer values me).

  Also I am feeling much less depressed. My counselor had me write a list of my sucesses in life (as I tend to have my failures memorized and written in stone...) and that helped. Made me feel a little foolish for dwelling on my failures, so I am going to break that habit!

  wishing you the best.  Mel

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By jacabeans— Last Modified: 12/17/10, First Published: 08/21/08