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Rheumatoid Arthritis with LGL (large granular lymphoma leukemia)

Jenny Community Member April 10, 2007
  • I have been living with RA for 32 years, being diagnosed at 23. I have 3 children, the youngest being a junior in college. The RA has been active almost constantly since the original diagnosis. I am presently facing shoulder surgery. Almost 5 years ago I was diagnosed with large granular lymphoma (lgl)leukemia which is found in extreme cases of RA patients. It is now in what is called a "reactive phase" (reactive to the RA). If it becomes malignant, they say there is no turning back and there is a 3 to 6 month expected fatality. I am interested in hearing from those with this lgl since it is such an unknown disease in conjunction with rheumatoid arthritis. Also I would like any comments on those with RA who have had shoulder replacement surgery.

2 Comments
  • Barbara
    May. 12, 2010

    I came across your post today.  I also have had Rheumatoid Arthritis for 36 years. Three years ago I was also diagnosed with LGL. I seem to be managing ok with my daily medications of 20 mg of tacrolimus and prednisone.  The prednisone I have taken without incident for many years. I have not heard of this "Reactive" illness as a result of having...

    RHMLucky777

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    I came across your post today.  I also have had Rheumatoid Arthritis for 36 years. Three years ago I was also diagnosed with LGL. I seem to be managing ok with my daily medications of 20 mg of tacrolimus and prednisone.  The prednisone I have taken without incident for many years. I have not heard of this "Reactive" illness as a result of having bothof these elements.  Please advise me of this possibility. I would really appreciate it.  It's so hard to get any information about LGL.

     

    Thank you

    Barbara

  • MaggieMoose
    Apr. 16, 2007
    Hello. I just happened upon your post tonight. I unfortunately don't have much knowledge about your leukemia, and I have only had a finger joint replacement and a shoulder arthroscopic surgery - but reading what you are struggling with in addition to RA made me want to send you a message of hope. I hope that you learn as much as you can and recover as best...
    RHMLucky777
    Read More
    Hello. I just happened upon your post tonight. I unfortunately don't have much knowledge about your leukemia, and I have only had a finger joint replacement and a shoulder arthroscopic surgery - but reading what you are struggling with in addition to RA made me want to send you a message of hope. I hope that you learn as much as you can and recover as best you can.  You take care.
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