I have been living with RA for 32 years, being diagnosed at 23. I have 3 children, the youngest being a junior in college. The RA has been active almost constantly since the original diagnosis. I am presently facing shoulder surgery. Almost 5 years ago I was diagnosed with large granular lymphoma (lgl)leukemia which is found in extreme cases of RA patients. It is now in what is called a "reactive phase" (reactive to the RA). If it becomes malignant, they say there is no turning back and there is a 3 to 6 month expected fatality. I am interested in hearing from those with this lgl since it is such an unknown disease in conjunction with rheumatoid arthritis. Also I would like any comments on those with RA who have had shoulder replacement surgery.
Published On: April 10, 2007