Kelley

Health Interests

remicade,  steroids (yuck),  pain releif,  hope this will got away for awhile,  fear this will kill me

Drugs I am Taking

lyrica,  motrin,  sulfaslazine,  soma,  prednisone,  oxycodone,  cymbalta,  klonopin,  remicade,  evening primrose oil,  b complex,  vitamin d,  calcium,  motrin

About Me

I am 39 years old with two teenagers, my daughter is 15 and son is 18. My daughter has ocd which makes her anxiety and my own clash. It's hard to relax in my home. I've been ill since I was 25. My diagnosis at first was chronic fatigue syndrome, which is a humiliating thing to tell someone you have. No, it isn't being tired all the time, there are the muscle pain and weakness, the insomnia, the brain fog, etc. I then went to another doc for fibromyalgia, she just put me on the max of oxycontin, 200mgs three times a day. I now see a rheumatologist, not a doc who is an internest that thinks they know it all. So, this is my new diagnosis and so far, things are looking hopeful. I still feel terrible but some symptoms have gotten better. I don't want to be negative because I'm always the fun one and this disease, this pain is making me way too negative. I'm not doing so well with remicade but I've only had four infusions and now my rheumy tells me I can get the remicade infusion once a month. YUCK! The day after, I fall all over, walk into walls, bruise really easy, etc. I get steroid shots in my back and the latest was my hip. OUCH! My hip and back are effected most. My hip will feel like a nail gun is penetrating it. Other than the damn RA, I am an ordained reverend, tarot reader and overall mystic. That is what I cling to during times like these.