Long story short: My current meds leave a lot to be desired. A week ago, I was in to see the rheumy, and commented that I didn't think the sulfasalazine was working very well (and neither is the humira, but heck it's only been 3 months on that -- also, I'm currently taking 30 pills per day, and have a topically applied treatment, plus a bi-weekly injection -- 4 pills a day would make a difference). He calmly said "Let's find out." I should've run. No really, I should of hit the jets and got the heck out of there Iceman!
He said to go off it and wait a couple of days (for the inevitable bite of dc'ing an RA drug) and then see how I feel, with the caveat that if I still felt the same after 2 weeks to then go back on it and see if I noticed a difference after the holiday.
Yeah. So, after a week, I went right back on my bumpy little friend after 1 week and I'm not looking back. It's been 3 doses since, and I already feel better than I did off of it.
Here's the after action review:
Miserable is not the same as #$(@*#&*$ MISERABLE .
Here's what I noticed changed being off the drug:
1) Lot's more movement impairing pain (and lots of pain pills)
2) LOOOTTTTT'S more stiffness of the 24 hour a day kind
4) An inability to count
B) Freakish increase in fatigue -- I mean, back to sleeping 16 or so hours a day
5) Really, really bad mood (which my lovely wife always attributes to a largish increase in pain levels that my naturally stoic genetics pretend is merely 'uncomfortableness')
Will sulfasalazine take me to remission? IMO, no freakin' way, but I can't take what will without sacrificing my liver. That said, it does a lot, but the 'lot' looks like a little over time when I still find that I can't really do anything I want to. It's no magic pill, but it's not tylenol ;)