HOW HAS RITUXAN(RITUXIMAB)AFFECTED OTHERS?

By cazzy Saturday, September 22, 2007

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HI, I HAVE BEEN A RHEUMATOID SUFFERER FOR 16 YEARS. A VERY PROGRESSIVE FORM. I HAVE REJECTED ENBREL, HUMIRA,AND ALL THE TABLET FORMS SO FAR. I HAVE BEEN NOTIFIED THAT I WILL BE STARTING RITUXIMAB SHORTLY. I HAVE READ THE SIDE EFFECTS WHICH ARE,VERY SCARY. I WAS WONDERING HOW MANY PEOPLE OUT THERE HAVE HAD SIDE EFFECTS?, AND WHAT THEY ARE?

I REALISE EVERYONE IS DIFFERENT AND CAN AFFECT MANY PEOPLE IN DIFFERENT WAYS.

I HAVE SUFFERED A SEVERE RASH, ICHING, SKIN DISORDERS, NAUSEA ECT, BUT THE MOST DISSAPOINTING IS, AFTER MONTHS AND MONTHS OF INJECTING, THERE IS STILL NO RELIEF.

THANK YOU

CAROL JENKINS

Comments (8) | Add comment

brenda

11/ 2/07 11:39pm

i recevied rituxin in jan and feb i came down with bronchitis and cough still have it i was told by my internist that i may never able to get anything by injection my ra says not to loose hope but sometimes i wonder i do hope it works for you brenda

Maricela

3/ 4/08 1:42pm

my insurance just ok rituxin as well and i am so scared to take it. have you found anything else that helps?

Maricela

3/ 4/08 1:44pm

Hi Cazzy,

how did rituxin work out for you. I have just been ok'd by my insurance to take it and i am extremely nervous. please let me know how it worked out for you. thank you.

brenda rondy

3/ 6/08 12:01am

hi cazzie i did not mean to scare you the dr and i have heard lot a good things where it has helped we just have to wait till infection clears up to try something else he has me om plaxqunil seem to help a little. please email back its nice to meet you

brenda rondy

3/ 6/08 12:18am

hi marcela have had ra 20yrs diferent med did not work rituxin i got an infection and still have it which has been a year. the dr my internist and i have heard that has worked good just not me he has me on placqnil once infection clears hes talking about mtx by in jection i hate it i had it with humaria buts it good to talk to other people with similar got bad knees wont do repl because of sugae so they may try injectioncs in my knees i also have a good family and animals please email me brenda

Maricela

3/ 6/08 5:09pm

Thank You Brenda,

I just had the infusion yesterday and so far so good. I think it gave me a burst of energy it may be the high dose of prednisone that they injected prior to rituxin though. I am keeping my fingers crossed. I have had ra for 15 years and have already had a total shoulder replacement which I had an awesome doctor do and have not had any problems with it it has been 3 years since my surgery. I am 37 years old and about 8 months ago I started to feel pretty horrible to say it mildly. I have a good family as well but sometimes the pain gets tooo intense that you just want to crawl into a cave or in my case my bedroom. Then i get past it and get happy and move on. It is definately a struggle as i am sure you know exactly what i mean. How have you been feeling lately? I live in California and the weather has been so cold that i have had the worst pain this winter than ever in my life. write back when you get a chance.

Janet Myers

7/14/08 1:18pm

I have read this post as my Dr has recommended Rituxin. I have been reading side effects and am scared as well. I have been a "non-responder" to Orencia and has serious central nervous system side effects to Enbrel...SO... little options out there for Biologics. (I am side -effect prone on several drugs I have tried) The risks just don't seem worth it and I have gotten uused to just not feeling up to par...my new normal! So-I as wondering how you all are now doing on Rituxin?

Janet

Maricela

7/16/08 1:49pm

Hi Brenda,

I hope your infection clears up soon. Yes it is nice to have people to talk to that can understand exactly what you are going through. I hope you feel better soon. talk to you later.

HOW HAS RITUXAN(RITUXIMAB)AFFECTED OTHERS?

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