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Monday, October, 13, 2008

Coumadin, prednisone & methotexate;)

by  Connie Diller
Wednesday, January 16, 2008
Connie Diller
Connie Diller
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I'm a Christian,Wife,Mom,Gramma,teacher,photographer,volunteer:)

I am a Christian. 47 years old this past summer. Now, happily married...

Connie Diller

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Well it's been some time since I've written...What's new? I've been on prednisone since Oct. 2,2007, (I've gained 27 lbs), good news is that the swelling has gone down... I can type, write, caress my Husband without so much pain, hold my grandchildren, substitute teach/ part ...
  1. Prednizone
    Perry Tomlinson
    Sunday, January 20, 2008 at 07:41 PM
    Hi Connie Its good to hear prednizone is helping ,but make sure you get a bone density test in 12months time ,I was on prednizone and ended up with osteoporosis in my hip,I havent been on any medication for 2 months touch wood no serious pain ,all I take now is Mono Vie juice, gin and raisins and use Himalayan Salt which is full of trace ellements actually the people tht live there reach 120yrs and more these ellements is in there water                                                   bye bye Perry                    

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    re: Prednizone
    Connie Diller
    Monday, January 21, 2008 at 01:48 PM
    Perry,

    Thank you for the response. How long were you on Prednisone if you don't mind my asking? That stuff scares me but it got my hands to work again. I'll be off totally by the end of May. I was on 10 mg daily at first. Had gained 37 lbs.(Wow)...now since I've started the methotrexate, (5 weeks on now), they are allowing me to drop off 1 mg every two weeks. I have lost weight, dropped 14 lbs now... which I could stand to loose since my extra weight add on. Also they have me on high doses of calcium carbonate & folic acid. Were you on those at any time? The combination of those two are suppose to help prevent osteo. If ya gotta minute could ya please let me know...Thank you sir...Take Care & God Bless, Connie

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    re: re: Prednizone
    Perry Tomlinson
    Tuesday, January 22, 2008 at 03:18 AM
    Scarey ,Connie I was only on 5mg a day plus mobic ,I ended up with osteoporosis in my hip 2 yrs later doc said it was the prednizone ? so now I dont take any drugs just eat normally enjoy a glass of red ,raisons& gin, moni vie himalayan salt ,walk everyday ,convinced myself that im ok ,take vit D ,E Calsium and not anypain for 2 months actually been dancing ,not saying this is a cure,but mylife has improved,and by the way i dont sell any of the above take care ,mind over matter is very powerfull, bye for now.
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    re: re: re: Prednizone & Hypnosis
    SherOnTheLake
    Friday, August 15, 2008 at 08:42 AM

    Perry, you've prolly seen quite a few new RA members arriving here. I'm another one. Sometimes I feel like I was caught up in a fish net with scores of others and then released to sink or swim ...at this site. LOL

    Anyway, I printed out this info you'd posted to Connie awhile back. I'm seeing I'm going to be forced to make decisions soon as to my own health care.

    I felt positive about your personal decision to get off the power meds and seek alternatives. I'm going to give your notions a chance. I may add something to your 'recipe' like fish oil, lots of omega 3 and acupunture but that's what good cooks do, we add a pinch here or there or even decrease the ingredients to our own tastes.

    I'm going to add something that may be interesting to you and others.

     

    I had my first child (mind you) on my 18th birthday (long time ago now) but what I want to relate is this:

     

     I requested absolutely no drugs while in labor, period~! MY OBGYN was dubious about my request at the last moment, then astounded that I continued chatting, laughing and actually enjoying this event. He even told me maybe it would be a good idea to lay back down since I was in full labor. Really. 

     When asked if I felt no pain I said, yes some but it was insignificant because I was so anxious and happy to be about to give birth. *sounds like b.s., I know; it wasn't, it isn't. I felt the contractions but I tuned everything out but bringing this child of mine into the world. At that point a request was made. I quickly was asked by my doctor if I'd object to having staff and residents witness this birth and would I sign a release for a taped film to be kept in the hospital library! Of course, I agreed and signed. Gee, I was a star ..lol.

     Upon the arrival of baby Lana I raised up from the table to kiss Dr. Durkin on the cheek and to thank him for everything. He said "Hey, Wait a minute here, I'm not responsible for this baby here, I just delivered her!" That got a big laugh from everyone in the room.

     

    *The point I wish to make is that I was told by this physician he knew of only one explanation for my total ease during childbirth; a rather rare thing called Self-Hypnosis. Doctor said he'd heard of it but that he was glad to actually witness this.

    The power of the mind, yes, maybe sometimes it truly works for us.

    The day I had my H-A in April of 03 while in Lowes with my hubby, I went down hard but even though the pain was certainly rough, while concerned people began gathering all around me I wasn't thinking I was dying. I was thinking that this must be a goofy scene to be laid out on the carpet-roller with a bunch of faces staring down on me with my underwear probably exposed. I could just imagine this scene on the 6:00 news. The arrival of the paramedics was only allowed to check my vitals, I decided. Asked what I felt my pain level was I told them it certainly felt more than a two. I refused to go by ambulance to the hospital, it would cost six-hundred dollars to go five blocks~!! Nah, baloney. I rode a wheelchair out to our truck, (free ride) Tongue out thanked the people for their good wishes, waved byebye and off we went to the ER.

    I experienced three actual brought back to life heart-attacks within that 24 hr. period of time ..and, TA DA, I'm here yet nearly six years later.

     

    *Go figure? I wanted to make a difference, to really contribute before I checked out, just wasn't ready yet. The Power of he Mind?

     

    Please don't misunderstand my post thinking I'm tooting my horn, not at all.

    I would just hope to let others know there maybe more control possible than we ever realize while we're still alive here on earth. I don't recall making a conscientous decision to tune out certain things in a crisis but I surely must have.

    I want also to say I sure as hell have times I'm a lot weaker and I don't think I can even get out of bed. But, maybe my post will help others have hope through the strength of their mind. Surprised God Bless us all. 

     

                                                                    There!!! I'm finally DUN.

     

     

     


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  2. RA
    Susan McCarthy
    Saturday, October 11, 2008 at 07:13 PM

    I just happened to come across this site. I have had RA for 7 years. I was on all the drugs including Embrel (sp) and methotrexate (sp). About 2 years ago a Dr. introduced me to Univera a natural product. Univera from what I found was completely science backed with human clinical independent trials. I started taking the Ageless Xtra and Regenicare which has Protectin in it. It is shown to be 13X more effective to Celebrix. I was pain and drug free in 2 months. Its been 2 years and i feel like I am 25 again, I'm 45. If you are in the pain I was in please let me know and I would be happy to share this product with you and hope that it can give you your life back like it did for me.

    Regards,

    Susan McCarthy


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