Brilliant post, thanks, Lisa! I've been on two DMARDs now that affect photosensitivity.
We live in the UK and my mother-in-law has a small home in south west of France (well, someone has to!), and I was determined to protect my skin, so last year I bought myself a burkini for swimming. The burkini is designed as a modest swimsuit for muslim women, but I have to say it works really well for sun protection as well, and they even do a high sun protection factor model too. The previous year, before I discovered burkinis I swam in PJs - not satisfactory:material that was both heavy and unflattering when wet, to say the least!
I don't know about suppliers in the USA, but there are a variety available in both the UK and Australia, and you can order them through Amazon.
I shall be packing it again for our holiday this year, along with the light long sleeved tops, linen trousers, and the essential wide brimmed hat. Despite the fact that it is pouring with rain in Britain, I feel nearly ready to say happy summer everyone.
the fabric is the same as for a swimsuit, so you wouldn't want to sit in the sun in it for too long, but it is fine in the water, and whilst drying off after you come out of the pool.
It attracts some attention, but it's all been positive when I explain it is protecting me from the sun. One of our famous chefs, Nigella Lawson, wore one in Australia a couple of years ago, so the Brits are aware of it, the French less so. Hers was a black one, mine is blue and grey.
Hi. Thanks so much for the info. I've just returned from a trip to Illinois and I did get some sun even though I did use sunscreen. I've been having some iching on my arms, neck, face and throat but no rash. (I'm on MTX and Humera.) There are no other symptoms except that darn fatigue which is really getting me down. Is it possible that this "ichyness" is from the sun even though there is no rash? Thanks.
excellent advice, all of it! Thanks so much for this.
You mentioned being light-sensitive due to your MS and it made me think of FO such as red over on our Migraine site. Teri reviewed pair of sunglasses specifically for people who are light-sensitive due to migraine - maybe they would work for you, as well?
Your welcome! With the MS, I am very heat-sensitive. When my body temperature rises, things start to go cablooey. My walking becomes adversely affected, my vision blurry, my brain really slow in thinking, and my mood cranky. But I'll definitely have to check out those sunglasses because bright sun in my eyes does indeed bother me as well (but not because of MS). Thanks for the link.
Nice post Lisa! Thanks for the info. I try to always have a hat with me, and when I do not, I KNOW it in a hurry! Your trip sounds like it was wonderful minus the sun damage.
Thanks Brad,
The trip really was enjoyable, much too short however. I posted a few photos on my blog. I think that I'll remember a hat next time. :)
Lisa