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Comorbidity is a definite clue
Kelly Young
Friday, October 02, 2009 at 12:35 PMre: Comorbidity is a definite clue
davsmom
Friday, October 02, 2009 at 04:47 PMI am so glad someone is finally bringing this to the forefront...I too have comorbidity issues, and look forward to the relief that new research can give us. I was a Critical Care Nurse for many years, and had only seen the end stages of lupus--I was devastated with my diagnosis..now it seems we have better ways of managing the multi issues than we have in the past. My recent bout with pericardial effusion was an awakening that it doesn't just go away -even if you take your meds and are super compliant!
Thanks for the wonderful information!
re: re: Comorbidity is a definite clue
Lisa Emrich
Tuesday, October 06, 2009 at 12:16 AMHi davsmom,
I'll all in support of new research (and more research). Being a nurse must provide you with a different perspective on health issues than the layperson (like me). My mother has several comorbidities (including lupus and scleroderma) and I see what the diseases are finally doing to her body. It's obvious that her life will be shortened, by how much none of us know.
I have MS and RA. It seems that when one acts up the other follows suit. No fun having multiple, and somehow related, diseases.
Hope you are doing well and that the wake-up call was brief.
re: Comorbidity is a definite clue
Lisa Emrich
Tuesday, October 06, 2009 at 12:11 AMHi Kelly,
I think you're right. Somewhere buried within the comorbidities might lie the answer to how these autoimmune diseases develop in a person. In researching for this and (more to come) comorbidity posts, I found that it was very difficult to find solid information on the issue. There is such a need for more research in this area.
Since I am researching other comorbidities, I will see what information I can find about the combinations you list. If you happen to know of some resources, please pass them on.
Lisa
(P.S. Yes, I know about the pregnancy remission. We also have concerns as to whether I would even be able to care for a child without considerable help. The MS takes alot out of me at times and I barely manage my responsibilities now. Tough decisions...that, and I just turned 41...tick tock tick tock.)
re: re: Comorbidity is a definite clue
Kelly Young
Tuesday, October 06, 2009 at 12:24 AMI understand. Unfortunately. My symptoms got worse with every childbirth. I have been thoroughly incapacitated by RA and advanced thyroid disease many times. It has been hard. Of course my kids are the sun, the moon, and the stars to me. There is a lot of heartache for what I cannot do for them, too. You are the only one who knows whether you can get the practical help you will need at times...
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diagnose with discord lupus
sweetessence
Friday, October 02, 2009 at 06:13 PMWhen I was diganose with discord lupus, I had several bald spots on my scalp, and very dark spots on my back, but at the same time I am experience stiffness, on hands in the joint area.
One mintue I am told it's just the symptoms from the discord lupus, and not I'm being told that I may have RA. I am not taking any medications, but I am becoming more tired, can't sleep. I don't know what to do next.
re: diagnose with discord lupus
Issadora
Saturday, October 03, 2009 at 07:20 AMre: diagnose with discord lupus
Lisa Emrich
Tuesday, October 06, 2009 at 12:19 AMHi sweetessence,
I'm so sorry to hear of your dual diagnoses. Has your rheumatologist made the official diagnosis of RA? Since you are not on any medications yet, what treatment does your doctor suggest? With RA it is important to get the disease under control quickly to protect the joints from damage and to attempt to put it in remission.
I hope that you are able to find something which helps the pain you are in right now. Good luck and thanks for your comment.
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Lupus and RA
Steven Kroll
Sunday, October 04, 2009 at 08:05 PMI'm one of those people with both diseases according to your separate descriptions of both diseases. However, even those statistics are not necessarily conclusive. I believe that the long-term usage of NSAIDS can be fully responsible for kidney disease. And yet, as strange as it may seem, conventionally, those are the drugs of choice.
It is my committed belief that both Lupus and RA are the long-term manifestations of emotional instability and that, even though they are described as two separate conditions, they are symptoms of the same disease, manifested in uniquely different ways
re: Lupus and RA
Lisa Emrich
Tuesday, October 06, 2009 at 12:32 AMHi Steven,
I certainly hope that nobody is trying to self-diagnose based on a few list of symptoms. I am not a doctor and there is only a limited amount of information which can be shared in 800 words or less. With that said, I agree that sometimes the longterm effect of some treatments can cause other conditions. I wonder how many people with RA really do use NSAIDs on a regular basis as treatment.....I don't.
There are still mysteries to be solved when it comes to autoimmune diseases. And science is still looking for answers. Although I do not personally believe that RA and/or lupus are caused by emotional instability, I will share that inflammation is associated with depression. The same inflammatory markers which are present in specific types of depression are seen in MS, a disease in which many of those living with it also experience various levels of depression.
Perhaps the question is - does depression cause the inflammation or does the inflammation cause depression? I don't know the answer. I only know that they are related somehow.
re: Lupus and RA
ginlyn
Wednesday, October 07, 2009 at 03:49 AMI do not think that you get RA and or Lupus by being emotional unstabile, I do think that someone who is always stressed can have a good chance of getting these disease by being highly and overly stressed and not usually by just by the everyday normal stresses but there are other stresses that can bring it on also. Example by : people in your lives that treat you emotionally, verbally and or anyway abusive can wind up with these diseases I know many people personally that have been treated that way and have diseases like RA, Lupus or other immune diseases out there. Yes that does include me.
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Untitled Comment
Lene Andersen
Tuesday, October 06, 2009 at 09:22 PM
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Hi Lisa,
I am thinking that the comorbidity issue may be a clue to finding causes and cures for these diseases. Like you, I have multiple diagnoses. The more I read, the more I wonder what causes a person with one autoimmune disease to develop more autoimmune diseases? I am glad smarter scientists than I are also asking these questions. :D
Do you think someone can be diagnosed with RA and AS? Or RA and PA? I haven't seen much on these combinations either...
Thank you for your good article.
Kelly
http://rawarrior.com