Thursday, May 31, 2012

Still Mysterious

By shannonlee Monday, May 11, 2009

I am still on this "mystery train" as I call it. I saw a neurologist about my left sided numbness and had another MRI, turns out NO TUMOR great! Small angioma was still present as well as vascular prominence. fun! Still no explaination, possibly migranes or depression or the "I dont know" syndrom. Had more blood tests....No Lyme thank goodness. I have low white blood count still...going lower very slowly, and large red blood cells or I guess high Leukocytes...anyone know blood work? Not getting much info from my own doctors other than, high RH factor and active inflammation.  I still never feel great. Im always tired. I do sleep in, Im somewhat active- more so since I got a little dog to walk. Had an ovarian cyst rupture--"POSSIBLY" as the doctors always say, it came up in a CT scan of my abdomen when I said it was burning and in intense pain.

 

If anyone is knowledgable about bloodwork reading please help!!!Laughing

5/11/09 10:57pm

Hi Shannonlee,

 

"Mystery train"  LOL ! That's a great term!  I'm glad you still have your sense of humor!

 

Its fairly easy to take the mystery out of lab tests.  Go to www.labtestsonline.org.  Use the drop down menu for CBC, and it will explain the mysteries of the complete blood count.

 

WBCs, or white blood cells, aka leukocytes, are infection fighting cells.  There are several different types and each has a specific job to do.  RBC, red blood cells, aka erythrocytes, are the blood cells that carry oxygen and carbon dioxide.  WBCs are often decreased in autoimmune disease and  RBCs can be too.  Sometimes the RBCs become enlarged, and this can indicate a form of anemia.  Has your B12 level been checked? 

 

Wish I could help with your other mysteries, but they are too deep for me.  BTW, I love your little Boston Terrier pic!  Take care!

 

Josephine

5/12/09 12:35pm

Regardless of your blood work, "numbness" is not a sign of RA - it is a sign of MS.  You need to see a neurologist. I have a cousin with this, and my sister was just diagnosed with it.  She is experiencing numbness in various limbs, and has a small lesion on her neck.  When the body attacks the myelin sheath around the nerves, it interrupts the transmission of the neurons through the nerves.  It is reversible, if you catch it soon enough. The drugs can be quite an issue, and both relatives, were Type A energetic types, and have lost most of their energy.  They both keep up the work outs, faithfully, and my cousin who has had it 10 years is doing extremely well. My sister is still working things out.  When an autoimmune disease attacks your body, you will feel tired.  Don't let the docs put you off.  Demand help - research MS - only you know your symptoms, but it is definitely a good direction to start in.  Then push those doctors.  They use methotrexate for MS, which so many people are scared of.  I have been on it for 10 years - and other than a slightly elevated ALT, have had no side effects.  It is a cancer drug, but they take it in grams, not 25mg, like auto-immune people do, so don't worry about side effects. You just have to take folic acid every day - not a big deal. 

 

I don't know much about interferon, I have heard it works well for some, not for others, lots of side effects maybe?  For me, anything is better than seeing my body crumble in front of me.  Good luck in finding a diagnosis. 

Lene Andersen, Health Guide
5/20/09 11:58am

We recently published a post with information about bloodtests - you can read it here.

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By shannonlee— Last Modified: 12/19/10, First Published: 05/11/09