I'm so happy!!!

By SuziKelley Wednesday, March 18, 2009

My right foot/ankle has hurt the worst right from the beginning of being diagnosed with RA 10 years ago.  It was always the first area of joints to begin hurting in a flare-up, and the last joints to stop hurting after a flare.  As the years went on, my right foot slowly but steadily got worse.  The last couple of years I don't think I've gone a day without it horribly hurting.  Now, if I have a couple of hours in the day where it's not hurting real bad, I'm happy!  I pretty much walk with a cane almost every day.  Sometimes, on really bad days, I have to crawl to the phone if my cane isn't handy... because walking on it just isn't an option.   Anyways, I recently went to a podiatrist.... who ordered x-rays, then an MRI.  Today I had an appt to discuss the MRI that I had done last week.  He showed me all of the areas where the RA has destroyed the joints.  I have 2 large cysts that are in the bone... he said the cysts are "rheumatoid tissue"... basically the RA taking over the joints.  In his own words he told me, "You're screwed." ..... the silver lining in this cloud:  I am going to have surgery done on my foot in May!  He will fill the cysts with ground up bone matter, and I'm going to have a few plates and screws/pins in my foot.  I'll have to be off of my foot for 2 whole months, which will not be easy having 4 boys (ages 12, 10, 10, and 2).  But my mom just decided last month that she is retiring this summer (how perfect is that?!) and she is more than happy to help me in any way she can.  She said she would come over when my hubby goes to work (he works 2nd shift), she'd stay here during the day/evening, and take my lil guy home with her at night!  I am just so excited that there is a SOLUTION to this pain!  My doctor told me that after this surgery is done and I am all healed, I should have NO PAIN in that foot!  Can you believe it?  No pain? I can't even imagine!  I'm on Orencia, and it is working great everywhere except for my foot.  So if my foot didn't hurt, I'd feel great!  Which means in a matter of months, there is a great possibility that I will feel great!  Wow!  It's just unimaginable to me!   I'm kind of afraid to hope for the results that the doctor seems confidant of.... but I can't help but to shout, "YAY!!!"

3/18/09 11:04pm

Suzy,

I am so happy for you!  There is light at the end of the tunnel!

Good luck to you and God Bless!

Lene Andersen, Health Guide
3/19/09 12:23pm

Woo! I'm so happy for you - there's a light at the end of the tunnel.

 

Please keep us posted on your progress?

3/19/09 12:33pm

Thank you!  Thank you!  I absolutely will keep you posted! Laughing

3/20/09 1:52pm

That is terrific news.  I am so glad the Orencia is working so well for you.  What a blessing to have your Mother come to the rescue.  Can't believe you cope so well with four boys.  I have boys 10 and 13 and I know how hard it is to parent the way you want to.

 

Good luck and keep us posted.

 

Cheers,

 

Jamie

Brad, Health Guide
4/21/09 10:55pm

I am SO happy I found your "Happy" post!!! My MRI's showed that I also have bone cysts in my right foot and right wrist as well! They are always the worst pain offenders as well! I am SO going after my RA doc about this! PLEASE let me know how this turns out for you! I am so glad for you! I am sure this is going to help you!

 

That's what I love about this site, you search around and BAM you find someone who is on the same track as you and it helps SO much!

 

Good luck! I will be praying for you!

Brad

5/20/09 11:34pm

You are blessed to have a mother that is so supportive.  May I adopt her?  Please?

 

You have a great attitude.  The truth about foot surgery and RA is real:  I chose to use Hospital for Special Surgery (ranked #1 in USA) with a top FOOT SURGEON, MEDICAL DR. instead of a Podiatrist since I have RA.  Unfortunately other people with surgery with Podiatrists around the same time as mine, more than a year ago -  are still on crutches, or have had and continue to have serious complications -  not even with RA.  

Not at all to scare you, but the recovery time with RA is much longer. So if your POD is great, just prepare yourself for a bit longer recovery time than the normal time.

 

I wish you the best of luck, and I am so happy that you have someone to care for you. You are truly wonderful with your spirit, and truly blessed.

 

HUGS to your beautiful mom.

 

Elizabeth

 

 

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By SuziKelley— Last Modified: 10/26/11, First Published: 03/18/09