Friday, June 01, 2012

My Story - The short version!

By Brooke Tuesday, September 16, 2008

Hello All!!

   I've put off posting on here until diagnosis, possibly because i was in a spot of denial! But i do want to become an active member of this online community as it was very useful to me in the first unsure weeks before diagnosis. I'd love to try and offer support to anyone who might need it, and share experiences with people who have already been through what i'm going through now.

   As you can guess i have been diagnosed, yesterday infact and am starting methotrexate on friday. And i'm really scared but i'm propbably just in shock.

   I thought a good way to start would be to give a very abbreviated version of my life story so you all know a bit about who i am before and after this disease and perhaps to offer some inspiration to someone out there who is where i was last month.

  I'm a college student at the moment who does very well and i'm not giving that up for anything, english, writing and reading is where i shine and idon't think RA will stand in the way of my dreams too much. I'm thankful i was never sporty!!

 

  I'm really optimistic, i hardly ever get sad about this because, to put it bluntly our family has had such a rough time of it the last couple of years it seems like another thing in a long lone of things, and you do learn to just cope with the tough stuff. For example when i first became ill this summer my best friend was having brain surgery over in australia at the age of 14 and my thoughts turned to her and another friend of the same age who had passed away recently and although i felt like i was facing losing my youth and mobility and so much more at the time, i felt like the lucky one. It really helps to put life into perspective when you witness tragedy first hand and all the things that have happened have really made me a better person.

 

  So i was thinking... No matter how severely naff it seems now, it'll probably look better in the morning (Y)

 

  So until i come back seriously annoyed about side effects as i'm sure i shall, i leave you on a cheerful note. Hope everybody is having a very comfortable day, Much love. Brooke x

It's been a month of methotrexate...
9/16/08 6:44pm

You have given me inspiration. All the best! Let me know how MTX works. I am thinking of switching medication. I am 34yrs and was actually diagnosed with ra on May 23rd this year. I was devasted! I thought that was the end for me. I have been a plaquenil 200mg once a day from since then. Not too sure that the medication is working. Will be going to the Rheumy next month was thinking of MTX. So I would like to know how it went with u.

 

9/17/08 2:25pm

This is one of those times when you don't always know what to say.  Like uh "congratulations" would be totally assanine.  Getting that diagnosis always comes as quite a shock.  For me if there was any positive side to it, it was confirmation at least that I wasn't entirely crazy.  So how bout this instead, welcome to the family!  Such as it is anyway.  None of us really want to be here after all, but at least we can be happy knowing you will be OUTSTANDING company!

 

-me

9/17/08 4:08pm

What do you say?? Everyone at college is like "...oh" lol

I'm just glad there's a family here to be a part of, without it i'd feel a bit lonely i wager!

mckenzie... shall defo let you know... 2 days to go... eeeek

am well hyper because of the steroids haha feel better than i have all month!!

9/17/08 4:10pm

and thank ooo for your kindness : )

Lene Andersen, Health Guide
9/18/08 10:42am

I'll join the rest in welcoming you to our online family.  Thanks for sharing your story - you're right, it's all a matter of perspective and being used to coping.  Don't be too scared about the meth - there are so many BIG meds for this disease that it quickly becomes old hat. 

 

Looking forward to reading your posts!

Anonymous
Joy928
9/18/08 6:26pm

Hi Everyone,  I'm new to this too - both to RA and to the website.  I just wanted to pass on what I have learned since being diagnosed (8/18/2008).  At first I was shocked but glad there was a name to what I had.  Then, after two days on the medicine,  I had a very bad reaction the mex.  My advice to you is to ready closely the symptoms that require you to call your doctor,  then follow them.  I did, and she took me off immediately.  While I was recovering from the effects of the drug, ( I only took three pills and developed a dry cough which quickly developed into a bronchitis/lung issue. Ok now after 2 weeks of antibiotic). I decided to approach this from a homeopathic way.  Changed my diet, added exercise every day, added supplements, vitamins, etc. This is really working for me and I decided not to take anything stronger than NSAIDs  - I just don't feel comfortable taking something that could cause something worse than RA.  

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (3514) >
By Brooke— Last Modified: 12/19/10, First Published: 09/16/08