The Month Ahead: Independence and Kids with JA

  • Independence. It's such a loaded word with so many meanings and each of us have a different take on it. Financial independence, moving out of your parents' house, the ability to take a shower without help, having your RA in remission after months or years of trying to find a medication that works. The possibilities are endless and this month, your MyRACentral team is going to explore what independence means to them.

     

    Sara Nash will talk about living independently from her RA and Cathy will touch on a different facet of the same topic, and telling us about going on vacation for the first time in a long time. Leslie will tell us about the aftereffects of traveling with a chronic illness and Brad is writing about the new assistive device that is helping him achieve a new level of independence.

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    Our other big topic in July is one that is near and dear to my heart. I first developed RA when I was four years old and grew up in the era where there really weren't any treatments for the disease. There are a lot of misunderstandings about what rheumatoid arthritis is when it affects adults, but very few people know that children get it. July is Juvenile Arthritis Awareness Month and we will join with The Arthritis Foundation and many others to bring awareness to the issues facing the over 300,000 kids in the US who live with a form of arthritis. Lisa Emrich will report on the JA Conference in Washington DC and Sara will interview a young adult living with juvenile arthritis. I'll weigh in on this topic, as well, writing about growing up with JA.

     

    RA affects your entire life, including your relationships with other people. Two of our Contributors are going to share their experiences of how RA has impacted their relationships. Cathy will write about RA and friends and V will share how she and her husband make their marriage work while they together face the challenges of a chronic illness.

     

    Living with RA is not just about the individual in their life. It's also about how we fit into society and how society views us. V will also take a look at The RA Patients Bill Of Rights, what it is, how it will affect you and what the future can bring.

     

    Most of the users in our community have adult-onset RA, but I do know of several who have lived with this illness since they were children. I hope you will share your stories of growing up with RA with the rest of the MyRACentral family.

     

    I hope you all have a wonderful July 4 long weekend. We look forward to reading your posts about what independence means to you!

Published On: July 01, 2011