I had no idea that Kawasaki disease was a form of juvenile arthritis, although I guess it does make some sense since the immune system goes so haywire with inflammation. I guess I just hadn't thought about it. A granddaughter of a friend had a terrible bout with this a while back and has made a good recovery. Is there any tie to later in life autoimmune illness?
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Lene,
Thank you for posting this. You give so much good information about JA.
The lack of professionals specializing in pediatric rheumatology is a HUGE problem. Especially since early and aggressive treatment is so important. I guess it comes down to all of us being louder... making people aware, asking for help paying the tuition of doctors who want to specialize in pediatric rheumatology. Being the squeaky wheel so that we can find a cure.
*Stepping off soapbox now*
Ish
by all means, get on the soapbox!
In fact, earlier this week, hundreds of people got on the soapbox in Washington DC for the 2013 Advocacy Summit. One of the priorities of the Summit was to ask for support for program that assists doctors who choose pediatric subspecialties, such as rheumatology, with repayment of their medical school loans. I don't know the results yet, but there are a lot of people working on this issue.
Thank so much for your comment.
Hi Lene,
Yes! I read about the 2013 Advocacy Summit & then started writing and calling my Representatives. I think I'm becoming a bit of a crusader!
Happy Weekend!
Ish
awesome! You'll look fabulous on the barricades, darlink!