An RA Beginner’s Guide: How to Manage Medication Side Effects

By Lene Andersen, Health Guide Tuesday, September 02, 2008
This post is the first in a series of Beginner's Guide to Rheumatoid Arthritis by Lene Andersen. Have a topic you'd like to see covered? Leave it in a comment!     The average person farts about 14 times a day. If you are on a medication for RA, you can probably double that.   Dr...
8/ 9/11 1:03pm

Why would anyone want to suffer these side effects when there are alternatives that cure the pain without side effects? I have been suffering for 3 years with various forms of pain. I suspect RA and OA.  My doctor suggested I start with niacinamide, 500mg, 3 times a day. Well that took care of about 50%. Niacinamide is a form of vitamin B and works wonders. Then I started experimenting with tumeric, also an anti-inflammatory. Tumeric is found in curry. I take 800 mg, 3X a day. So now my pain is about 90% gone. The other 10% of pain disappeared when I started to take krill oil as my fish oil of choice and made sure I had 1.5mg of astaxanthin in it. I still carry a little stiffness but the pain is gone. I am now going to try a little exercise to see if I can improve my mobility.

 

I suspect that the amount of money I spend on supplements is far less than what you spend on your drug therapy. You can verify all of this information on the internet. If your doctor doesn't go along with it, find another doctor because yours has blinders on, or possibly is being paid bribes by the drug companies for the drugs that he prescribes.

Wake up and take charge of your medical care!

Lene Andersen, Health Guide
8/ 9/11 2:22pm

Alternative remedies can play very valuable role in managing pain and I'm very glad to hear that you have found a method that works for you. However, I must caution you that if you do have RA, the remedies you mention will not control the disease and you are still vulnerable to joint damage and the other effects upon your body that can come with RA (e.g., higher risk of stroke and heart attack, etc.).

 

Taking control of your medical care involves a number of different factors, including making sure you're informed about your disease, its consequences and the pros and cons of taking medication. Being open-minded means being open to the contributions of alternative medicine, but it also means not putting blinders on when you are considering allopathic (i.e., Western) medicine. At this time, there is no cure for RA, but there are medications that can significantly improve quality of life by protecting your joints and other parts of your body from the effects of RA. When it comes to dealing with pain, certain remedies like vitamins and turmeric can be helpful in managing the symptoms - some like yourself find they deal with the majority of symptoms, but this is not the case for everyone. RA and pain affects everyone slightly differently and we all have different responses to medication, be they allopathic or alternative.

 

thank you for sharing your experience!

8/ 9/11 6:12pm

your right why would anyone take those meds. im going to make a long story short i had RA when i was in the 8th or 9th grade. didnt see the doctors watched  what i ate an for the most part felt good almost all the time. then in may 2011  my world came to a end. 5 oclock one morning a dog was chasing me i only made 2 steps with my left foot dang i was in great pain im thinking how could i have broke my foot all i did was try to run. well went to doctors did xrays an yes there in the xrays RA was having lunch with my joints come to find out not only the joints in my foot was bad my ankles, my hips , my wrist an my fingers. an now im on RA meds. if i would have done that years ago i wouldnt be like this . im looking into hip recplacement an surgery on my left foot as well oh an both joints in both feet  are very bad , so even those years i didnt hurt as much RA was still having a hay day with my joints yes its  nice not to hurt an feel the pain when RA is having its way with you . but eating right caint stop or slow do what RA does to your bones,joints, an everything else im only 42 an have a body of a 70 year old woman  what a slap in the face just when i thought i had it licked it hits me hard. yes there is some food out there that can help with RA an some herbs as well BUT they CAINT STOP what RA does to you they can just make you feel a litttle better

8/ 9/11 7:24pm

You might want to see what other patients who have the disease say. I did read about 1 gal who cured her RA by changing her diet to mostly fish. She ate fish twice a day and in a couple of months her RA was gone. She was invited to speak at a symposium in Geneva and I don't know how that turned out.

 

Dr. Weil has some interesting ideas on his website as well.  Chinese and Indian medicine could be helpful as well. I would try only one at a time, otherwise you won't know what worked. The herbs I mentioned were for pain relief without side effects. I also like Dr. Mercola. Check his website. I wish you well. It may take time, but I suspect there actually might be a cure..but it may take your efforts to find it. The medical community in general would rather have you in treatment.

8/ 9/11 7:30pm

I believe there could be a cure for the disease, or at least a way to stop it in its tracks. Unfortunately, no one can trust the NIH, WHO, FDA and other organizations which protects big business in this country. The remedies I mention were for pain control, without side effects. But there is research done all over the world if you can find it. Dr. Weil has some interesting notations on his website and others who would disagree that there is no cure. Even if you don't believe them, it is worth researching if you value your own health.

8/ 9/11 8:00pm

i have look at he diet plan an that is what i have been on for about 10 years now but it wasnt his an yes eating like hi says does help but the problem is still there

1/ 8/12 3:36pm

I have had the RA tests and I don't have it. Also had various tests for OA, and nothing showed up. After doing a little research I think I have trachanter bursitis. I will ask my doctor if there is a test for this when I see him later this month. I am open to allopathic medicine, but only as a last resort. Our healthcare would cost so much less nutritionists and naturopaths were covered under insurance care.

Lene Andersen, Health Guide
1/ 9/12 12:29pm

Lladyliza - I have read what people with RA have to say. I have been Community Leader on this site for almost 4 years and have met hundreds of people who live with the disease. I am very involved in the online RA community and have talked to them, as well. I have had RA for 45 years and have tried pretty much everything, but still ended up in a wheelchair at age 16. I eat nothing but fish and although I believe it helps keep me healthier in general, it has not had any impact on my RA.

 

Everyone is different and everyone reacts differently. My point was that it is our responsibility as people living with RA to thoroughly research the options out there and the credibility of the claims made. Getting to a point where you feel better can include a variety of tools, including diet, medication and alternative treatments.

Anonymous
Carla
8/23/12 5:10pm

I am just starting my Humira.  My doctor wanted me to take Enbrel, but my Ins wants me on Humira.  Thanks for all the info!  I think it really helps in preparing for the inevitable.

Lene Andersen, Health Guide
8/23/12 5:24pm

Hi Carla,

 

I started on Enbrel and am now on Humira. It works just as well for me and actually with less side effects. They're both anti-TNF drugs and it probably doesn't matter which you try first. Hopefully Humira will do the trick for you. Please keep us posted on how you do!

1/ 7/12 1:23am

Ha Ha Lene

 

I am reading this post for the second time as my constant nausea has increased a lot in the last few weeks,  I don''t think I noticed your comment on people farting 14 times a day, I have a quirky imagination and could but not help but start to imagine ways in which this information was discovered.

 

Sorry, just a slight diversion.

 

Think it sounds like my stomach may have become more unhappy than before about the meds.

Lene Andersen, Health Guide
1/ 9/12 12:32pm

not surprisingly - RA meds are part of the stomach. integrating things like acidophilus and drinking lots of hot water with lemon in your daily routine can be very helpful. Still, many people with RA find it necessary to take some sort of medication to counteract the side effects. I've been taking stomach meds for over 20 years now. It helps me tolerate the medication that makes my life possible.

 

And I'm with you. That research into farting has me giggling every time I think of it. Wink

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By Lene Andersen, Health Guide— Last Modified: 10/08/12, First Published: 09/02/08