"I don't have a choice of whether or not I have Parkinson's: I have it. But other than that, I have a thousand choices, and I can't let myself be sunk by the weight of that one non-choice..."- Michael J. Fox, Entertainment Weekly, April 17, 2009
When I was four years old, my body was hijacked, possessed by another entity bent on taking over my... Read more
I used to start the day with crying in the shower, hiding my face under the spray, silent tears of pain mixing with the water. Once the day got going, I'd build up the barricades again and distance myself from the pain, but in those first moments after waking, my soul was too raw and tender to take the assault. Every morning, I felt the full... Read more
When your RA starts to affect your ability to do your job, it can be terrifying, persuading you that your ability to lead a "normal" life is close to over. It doesn't have to be. Retraining and education can help you find a new career, a new life.
Education is never a bad idea, but it can be particularly important for people living with a... Read more
The other day, someone asked me why I couldn't seem to learn to work within my limits, despite knowing that doing too much inevitably leads to needing to sit still for several days healing. For once I didn't joke, but honestly told them it was because of the dread.
Dread is the undertow in my life. Dread that my rheumatoid arthritis is... Read more
Work is important, especially when you have a chronic disease. Your rheumatoid arthritis may change how you live your life, adding an impressive list of medications to your daily "diet," making everything from getting dressed to making coffee more complicated and require compromises in your social activities, your sleep schedule and your sex life,... Read more
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