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Monday, September, 08, 2008

Medication Suggestions

by  Daina
Tuesday, May 20, 2008
Daina
Daina
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Hello, I'm a 32 year old mother of one three year old boy. ...

Daina

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Hi,

I have a rheumy appointment on May 29th. This will be my first with this one. I moved to Syracuse from Chicago and am extremely worried about the change in doctors. It took me 5 years to find one that I connected with in Chicago.

 

Anyway, I've been on Enbrel for a...

  1. Untitled Comment
    natalie
    Tuesday, May 20, 2008 at 12:21 PM

    welllll, if you're open to just about anything:

     

    sleep more.

     

    buy a juicer, and juice, juice, juice. Do a juice fast for a few days. If you really need something more substantial, eat rice cakes with dairy-free guacamole spread on top.

     

    drink more water.

     

    breath deeply.

     

    relax.

     

    take prednisone for a day or two.


    reply
  2. Some things to think about!
    Hollybgroovin
    Wednesday, May 21, 2008 at 12:54 AM

    I am sorry to hear that you are having so much pain.  It does sound like the Enbrel isn't working so well for you anymore.  If you are thinking about trying a new medication you might speak to your rheumatologist about Orencia.  I have be waiting, not so patiently, for the money to be able to afford it but have heard wonders.  I used to sitting in the infusion room at my rheumatologist's office and heard many, many success stories.  I have included a link if you would like to read up a little:

    http://www.healthcentral.com/rheumatoid-arthritis/c/53/1832/orencia/

     

    Another thing that you might be interested is steroid injections in your hips. They do wonders for me as I am waiting for total hip replacement.  My injections are steroid and lidocane and they really help.  And believe me, I know how hard it is to get around when your hips are flared.  Also try a rice or bean bag heating pad for your other joints.  The bag is able to mold to any joint that you need it for.  I hope for relief soon, and let us know how your appointment went.  Keep us updated.  Good luck and best wishes!


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    re: Some things to think about!
    Daina
    Wednesday, May 21, 2008 at 07:07 AM

    Thanks to both of you for your suggestions. I'll let you know how everything goes. Today, I have a primary care appointment, think I have a sinus infection. Infections and Enbrel don't mix well.....


    reply
  3. Have you Tried Humira?
    Christina Root
    Wednesday, May 21, 2008 at 09:45 AM

    Hi my daughter had the same problem with Enbrel and was moved to Kineret which gave her a lot of grief  (it isn't even approved for juvenile use) and now is being set up with Humira. I have heard from several people that have been move to Humira from Enbrel and have had a lot of success. Ask your new Rheumatologist about it. Just a thought!! Also I know that Enbrel is not as successfull in people if they don't take a concurrent dose of Methotrexate. At least that is my understanding. Good luck!!!


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  4. meds
    CyndiLou
    Wednesday, May 21, 2008 at 02:58 PM

    I'm currently waiting to try something new  myself. I've been on prednisone for 28 years and the doctors want me off of it. I am currently battling a post-op  infection so they dont want to try anything new yet. I think they want to try enbrel or humira. Humira has a better success story for my family so I may go with that. Ask your doctor about Humira. Good luck.


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