Remicade is going.........

Daina Living With It Hello, I'm a 33 year old mother of one four year old boy. I... Send Message Subscribe: Daina

Thursday, July 31, 2008
View All of Daina's Posts

OK, so I started the infusions about 1 and 1/2 months ago and all seems to be going. That's it , just going. I have no side effects, no allergic reactions and it really feels almost like a spa day at the infusion center. But......I feel worse than I did when they started. more joint pain, more fatigu...

Hide Comments | Add comment

I'm a year late on this reply!
Ellen
Friday, June 26, 2009 at 09:17 AM

Hi Daina,

Just saw this post of yours from a year ago --- glad it felt like a day at the spa. I hated getting the infusions because I was not sick enough at first to feel ready to be tube connected for 3 hours in a room with several other people, all of whom had been given Zyrtec, and were drowsy - no one wanted to talk, I felt like I was trapped in the Matrix ! (if you've seen the movie, you'll know what I mean).

I'm a year late on this reply!
Ellen
Friday, June 26, 2009 at 09:17 AM

Hi Daina,

Just saw this post of yours from a year ago --- glad it felt like a day at the spa. I hated getting the infusions because I was not sick enough at first to feel ready to be tube connected for 3 hours in a room with several other people, all of whom had been given Zyrtec, and were drowsy - no one wanted to talk, I felt like I was trapped in the Matrix ! (if you've seen the movie, you'll know what I mean).

I'm a year late on this reply!
Ellen
Friday, June 26, 2009 at 09:17 AM

Hi Daina,

Just saw this post of yours from a year ago --- glad it felt like a day at the spa. I hated getting the infusions because I was not sick enough at first to feel ready to be tube connected for 3 hours in a room with several other people, all of whom had been given Zyrtec, and were drowsy - no one wanted to talk, I felt like I was trapped in the Matrix ! (if you've seen the movie, you'll know what I mean).

I'm a year late on this reply!
Ellen
Friday, June 26, 2009 at 09:17 AM

Hi Daina,

Just saw this post of yours from a year ago --- glad it felt like a day at the spa. I hated getting the infusions because I was not sick enough at first to feel ready to be tube connected for 3 hours in a room with several other people, all of whom had been given Zyrtec, and were drowsy - no one wanted to talk, I felt like I was trapped in the Matrix ! (if you've seen the movie, you'll know what I mean).

I'm a year late on this reply!
Ellen
Friday, June 26, 2009 at 09:17 AM

Hi Daina,

Just saw this post of yours from a year ago --- glad it felt like a day at the spa. I hated getting the infusions because I was not sick enough at first to feel ready to be tube connected for 3 hours in a room with several other people, all of whom had been given Zyrtec, and were drowsy - no one wanted to talk, I felt like I was trapped in the Matrix ! (if you've seen the movie, you'll know what I mean).

How

I'm a year late on this reply!
Ellen
Friday, June 26, 2009 at 09:18 AM

Hi Daina,

Just saw this post of yours from a year ago --- glad it felt like a day at the spa. I hated getting the infusions because I was not sick enough at first to feel ready to be tube connected for 3 hours in a room with several other people, all of whom had been given Zyrtec, and were drowsy - no one wanted to talk, I felt like I was trapped in the Matrix ! (if you've seen the movie, you'll know what I mean).

How ever

I'm a year late on this reply!
Ellen
Friday, June 26, 2009 at 09:18 AM

Hi Daina,

Just saw this post of yours from a year ago --- glad it felt like a day at the spa. I hated getting the infusions because I was not sick enough at first to feel ready to be tube connected for 3 hours in a room with several other people, all of whom had been given Zyrtec, and were drowsy - no one wanted to talk, I felt like I was trapped in the Matrix ! (if you've seen the movie, you'll know what I mean).

    How ever I

hit the wrong button I think ...
Ellen
Friday, June 26, 2009 at 09:22 AM

I Hate when that happens! Sorry to mess this up.

Anyway, I was just going to say that the effect of the Remicade over the following week and 2 months was amazing. But it was really more than I needed or bargained for, but gave me the motivation to choose something as effective, though a little less overwhelming - like the Enbrel I'm on now.

    I COMPLETELY understand being 'angry at the healthy husband! I have to watch that myself - he's the one who stands by me, even if he doesn't understand it all, is faithful, puts up with it - then I have to back off in embarrassment, thinking "why am I being so difficult to the only person who is really there for me?"

    This RA is a difficult lesson to deal with!

Hope your meds continue to work well for you! Sorry you've had to deal with this from such a young age - for me, it wasn't until my 50's with my daughter leaving home, etc.