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High Becky Sue - I'm here if ya need to whine!!!
amy's compassion
Tuesday, March 31, 2009 at 05:16 PMHay Amy and Becky
bj in pain everyday
Tuesday, March 31, 2009 at 09:54 PMI agree, I have RA primarly in my feet, knees and hands, so walking is really hard during a flare. I do lots of swimming and I ride my bike. I do relaxing yoga, and stretching exercises. When I am not in a flare, I use leg weights and do low impact exercises, think leg lifts and squats. I don't do very much at a time or I will flare. The trick is small bursts of exercise in small increments a couple of times a day. I try for 3 times. I ride for 15 min in the morning and then do leg exercises at lunch (when I was working) then relaxing yoga before bed.
The trick is moderation in all things. You will never be able to totally get rid of the roids(at least in my case). I however always decline the shots, and take the smallest amount that removes the pain and inflamation.
I know it is really hard the point is not to loose weight the point for me is to not become disabled.
BJ
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Untitled Comment
Laura
Wednesday, April 01, 2009 at 03:51 PM -
I Hear You!
Josephine
Wednesday, April 01, 2009 at 10:01 PMI find RA a very hard disease, although I guess any disease is hard! I too used to be very fit and active, and boy do I ever miss being able to work and play all day. I am still trying to figure out the exercise thing. I do my best to protect my joints by really paying attention to form and posture and by being very aware of how I'm moving. And then its a matter of how much I can safely do - I've learned to go very slowly in terms of increasing exercise time. Its frustrating to have to go so slowly, but overdoing and injuring myself is worse.
I lost the weight that I gained during my first year with RA (I was on a lot of prednisone and very inactive) by following the advice Dr. Joel Fuhrman gives in Eat to Live. Basically its eating lots and lots of veggies, legumes and rice. I always rinse the legumes realy well after the first boil to reduce the lignans, which some authors have linked with inflammation. I have also gone back to occasional free-range chicken, although Fuhrman's approach is very close to vegan. Anyway, reducing the simple carbs and avoiding processed foods seemed to be what helped me lose the weight.
I also try not to think about what I used to be able to do, because that makes me pretty blue. Instead I do my best to focus on each day as it comes, and I try to always have something planned in my day that is fun and that I can look forward to. Corny old advice I know, but it does help. You will figure it out, it just takes time.
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Been there sister!
AmyAria
Friday, April 03, 2009 at 02:28 PMIt is HAAAAAARRRD to lose those post baby pounds and no getting around it!! Consider how much energy you expend when you are chasing kids around, nursing, and trying to keep the homestead from being condemned by the health department. I swear I had days where I was dang proud to have taken a shower, let alone gotten in a workout. Now add the RA factor in there on top of it?!
First things first, be kind to yourself. Please. Good lord, you just got done making an entire human being! Personally I really despise all those celebrities that flaunt their post baby bodies at us considering they have nannies, cooks, personal shoppers, assistants and professional trainers. The result is we mere mortals then get their bikini clad glossy pics thrown in our faces and feel like crap. Not fair, and not a realistic expectation.
Next, if you focus on the "big" number you will stinkin' lose your mind. I had 50 lbs to lose after my daughter was born. I would feel all proud about having dropped 3, then do the math and figure out how much was left and......nothing makes me feel better or faster than a handful of oreos. MMMMmmmm......oreos. So seriously....start small. Frankly anything more than a pound a week is considered unhealthy anyway. Set a goal somewhere in that neighborhood (or even less) and celebrate the victories! If you fall off the bandwagon, don't sweat it. Perfection is boring.
Lastly small changes, small changes, small changes. I was shocked at how far I got from eliminating soda from my diet and not eating past 8pm. You've already gotten some good exercise advice from some other folks so I won't be repetitive. Only one other thing I've found is that my Nintendo Wii Fit makes me go Wheeeeee!
Be kind to yourself. Allow mistakes and let your on-line community help you out. Having a support system goes a very long way be it with RA or weight loss. Keep us posted, k?
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Exercising with RA
Pavewife
Monday, April 06, 2009 at 05:52 PMI have had RA since I was 16. I am turning 50 this summer. You do have to keep moving, even when it is hard. I sometimes I have to take a hot shower so I can move, do 30 minutes on my elliptical, and then shower again to get the sweat off. If you don't use it, you will lose it. If the RA is too bad, and you can get physical therapy with your insurance, then use it when needed.
Swimming is great exercise as well. The weight from steroids will go away. Make sure that you have your thyroid checked as well. Many with RA seem to have hypo-thyroid as well.
You may want to try using extra fish oil or krill oil as well. Not only does it help the joints, but it is a natural mood elevator!! If you can keep a positive attitude that is half the battle in dealing with RA.
re: Exercising with RA
Anonymous
Wednesday, May 20, 2009 at 07:43 AMIve had RA since I was 17 , I am now 28 and these last 3 years have really shown me how ugly it can get. Its been pure hell for the last 2 weeks, with 3 boys to raise a huge garden and a bunch of pets. Even typing now is very painful. Ive been feeling like my life is over. This was the best advice Ive heard, seeing that you have dealt with it for that long and are still positive gives me hope.
Thank you,
Anne
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So what's going on with my ra buddy, Becky Sue? I know exactly the frustrations that come from wanting to move followed by the risk of feeling worse. I have found the only exercise that I can tolerate is just walking. Even then I sometimes flare. But if you make your goals very attainable, say, walking one block for a week then maybe one and a half the next week, you may be able to slowly work up to more. Remember that anything you do can be exercise: working in the yard, vacuuming, that kind of thing. Try to have several small meals instead of three large ones. And try really hard not to eat after dark. You have every right to feel sad and sorry for yourself. You have a systemic issue that effects your life. You have been a source of comfort to me with my ra issues and I so appreciate you. ---Amy