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Monday, September, 08, 2008

How long to wait?

by  legalscooby
Monday, January 07, 2008
legalscooby

legalscooby

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I was diagnosed over a year ago with RA. After waiting forever and a day to get an appointment with a rheumatologist, I was put on plaquenil about 5 months ago. It has done absolutely nothing for me, and my rheumatologist keeps saying "give it time".  I know it can take some ti...

  1. Untitled Comment
    Amy
    Monday, January 28, 2008 at 08:35 PM

    Hi my name is Amy,

    I have had RA for 3 years now, and mine is on the control side of things right now. I wanted to inform your of my story. I was given plaquenil, and I remember that I was feeling no change at all, my feet hurt all the time and it wasn't making thing any better. I also want to tell you that I wanted change fast. So I changed doctors and he put me on Humira, and along with some other combs that your doctors know of.. I feel better... But the answer to your question how long to wait? I had to wait about two years to get where I am now, and along with staying in control with my doctor it has helped. ( side note to the humira, you can't of tested + for TB ever, and they can help you if you don't have any insurance).. But stay with it, and stay positive...


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  2. Untitled Comment
    azgirl87
    Wednesday, January 30, 2008 at 09:33 PM
    Hi - I have had RA for 15 years now and I was diagnosed when I was 24 years old.  It was a rough go at first.  I couldn't turn the shower on, couldn't dress myself - I literally crawled on the floor to get around.  I had no clue what was wrong with me.  Since then, I live a active, healthy life.  I go to the gym, bike ride, do everything a "normal" person can do, just a little more exhausted than everyone else.  I have been on plaquenil since I was diagnosed.  I can tell you that the plaquenil alone may not be enough.  I am also on Celebrex and Sulfasalzine which has been a life saver for me.  It does take time to work, but 5 months is too long to continue suffering.  I would recommend finding another doctor - life is too short to live in pain.
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