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Saturday, October, 11, 2008

Taking Mobic aka Meloxicam and some questions.

by  Amy
Thursday, June 12, 2008
Amy
Amy
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I am 43. Diagnosed RA for a year. Just starting flaring a coupl

Love to ride horses and work dogs. Gained 40 extra (ugh) pounds in...

Amy

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Hi.  I'm new to this site, but I guess it's time.  I just read a post - I apologize, but I cannot remember the name of the person who wrote it.  It was a question regarding Mobic (Meloxicam).  I just starting taking Mobic and I think it's a good drug.  It takes the edge of...

  1. "Pills"
    Hollybgroovin
    Thursday, June 12, 2008 at 01:43 PM

    I take many, many pills for the treatment of my very severe RA.  That being said if you do not feel comfortable taking these pills then you shouldn't.  I know how frustrating it can be to have all these doctors trying to pressure you into their choice of treatment for you.  But you have to have a part in your own treatment and a say as well as it is you that will be taking, or not taking the pills.  If you want to try the all natural approach and if that is what you feel comfortable doing then you should go for it!  Speak open and honestly with your rheumatologist about what you what you feel comfortable doing.  If your rheumatologist wont listen to how you feel, then you owe it to yourself to find one who is willing to listen to you and work with you on a more natural approach.  The only thing I want you to keep in mind is that RA can cause damage even when you have no pain.  But I would never suggest that you start a treatment that you don't feel comfortable with.  I hope you find relief soon and I hope that you can find a perfect alternative approach that will work for you!  Good luck and best wishes!

     

    Also, a diet high in Omega 3 fatty acids (such as salmon) naturally combats inflammation which may help with your pain as well!


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  2. Mobic
    rbcool
    Saturday, June 14, 2008 at 11:15 PM

    I too have been taking Mobic off and on for a year and it does not seem to help with the pain. I prefer Naproxen which does help more and doesn't trigger migraines but my doctor is concerned that Naproxen will cause stomach problems. I is nice to hear that someone else does not have good results with Mobic either. I am on Hurmira for two years and that has worked great for me.


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  3. Other ways of treating rheumatoid arthritis
    Susan
    Saturday, July 05, 2008 at 05:17 PM

    Amy,

     

    I was diagnosed with Rheumatoid Arthritis 3 yrs ago.  The rheumatologist wanted to put me on methotrexate but I had a positive lyme diagnosis and felt the methotrexate would suppress my immune system and the bacteria would take over and kill me.  I was very sick at the time with RA in every joint except my hips and spine.  I was completely housebound and could not be left alone because I could become trapped behind doors and couldn't open pill bottles.  I could barely dress myself , brush my teeth, hair, shower, etc.  Can you relate?

     

    I, too, am a horse rider and I used to groom and show dogs.  I started searching the internet to learn all I could about RA and was I ever surprised to learn all the research out there that shows a clear connection between bacteria and RA.  Also, leaky gut and RA.  I changed to a vegan diet as per this doctor:  www.drmcdougal.com   I did not know him, just found his website.  He has done much study and research on the effects of diet and RA.  It cost me nothing to give the vegan, low fat diet a try.  Within two weeks, I was 50% better.  I could now walk two hours before having to stop.  It just made a huge difference.  So I sought out a doctor who understood leaky gut syndrome (google it) and healing the body.

     

    I found a wonderful integrative doctor who is a member of ACAM. www.acam.org.  He would not use any antibiotics, but with him, I brought my RA from a high moderate to a weak positive. He focused on healing the gut and bringing the body back into balance so it could heal itself.   At the same time, I found www.roadback.org and www.arthritistrust.org which both believe in and have proof positive of an infectious cause to RA.  Clear the infection and the RA goes into remission.  I was able to get my rheumatologist to prescribe low dose minocycline, but he would not test me for bacterias.  Specifically, lyme, mycoplasmas and strep have been found in the synovial fluid of RA victims.  I don't understand why most rheumatologists will not give infectious cause any respect.  If my first rheumy would have tested me as I asked, we could have saved a lot of time.

     

    After one year with my wonderful integrative doctor, he could do no more for me.  I learned of a lyme literate rheumatologist who believes in infectious causes to RA.  She runs bloodtests on a regular basis and I consistently test positive for Babesia (parasite in the blood  that comes from a tick bite), lyme, mycoplasmas, chlymadia pneumoniae, h. pylori (gut bacteria that was causing my leaky gut), Ebstein Barr Virus.  Clearly, I am a bacteria factory.

     

    The really good news is I am again riding.  I started riding again 1 1/2 yrs ago while working with the integrative doctor.  Today I rode my 2 yr old on his first outing alone.  A hairy experience.  Point is, I am well enough to do it.

     

    Start researching.  Go to the websites I have listed above.  Learn about the treatments that are targeting the cause, not just the symptoms.

     

    BTW, my current rheumatologist does have me on Enbrel while she treats antibiotically and herbally.  Detoxing is a key issue for me. 

     

    So much to learn!  But that is the good news!!!!!!  There is so much more out there for you than just taking dangerous drugs.  Eat mucho healthy to give your body the nurishment it needs to fight the disease and the side effects of the drugs. 

     

    Take care of your gut.  The drugs and antibiotics wreck our gut and 70% of our immune system is in our gut.  People don't realize this.  Heck, doctors don't realize this and it was a study done by Yale that uncovered this fact.  If your gut is sick, you are sick.  You do not have to have stomach problems to have a leaky gut.  For me, my damaged gut was causing inflammation in my joints.  Healing my gut nearly brought my RA into full remission.

     

    Note that I have a very aggressive form of RA, so what has given me back my life could very well cure you.  I have not had to take a pain pill of any kind for, gosh I don't know when I last took an aspirin,  two years or more.

     

    Happy riding and healing your body from RA.  It can be done and you can keep riding!

     

    Susan


    reply
    re: Other ways of treating rheumatoid arthritis
    Amy
    Thursday, July 10, 2008 at 01:42 AM

    Susan:

     

    Wow!  Thank you so much for your comments.  I have a really crappy gut - have been a poster child for GERD most of my life, pyloric muscle spasm, etc.   Also, since working at home transcribing all day and being sore I have gained 40 pounds!

     

    Like you, my experience is the rheumatologist wants me on the drugs, the hand surgeon wants to "scrape" the tendons in my right (dominant) hand becasue of synovitis.  Your info re testing synovial fluid is great to have because I have a wealth of extra in my right wrist currently.

     

    Also, I absolutely believe my RA started from a bug bite.  I have seen some of the info you shared with me and right before my finger blew up like a balloon leading to my diagnosis, I had this itching, irritated bug bite on my finger.  Try convincing the MD's of that (though I do have an excellent primary care!)

     

    One of my sisters battled weight for most of her teen and young adult years.  She, too, had gut problems.  After no one listening for years, she took it upon herself to learn everything she could about food.  She is completely vegan and really fit now.  She is a great resource of info and strength for me.

     

    Two things I know for certain - I have to get my butt moving.  The 40 extra pounds makes it difficult to figure what is weight-related and what is RA-related.  In addition, I know I have to keep my joints moving.  Second thing is, I will not let a doctor talk me into taking any of the RA meds before I can get the weight off and assess which is which.

     

    I am way luckier than a lot of sufferers.  I have been diagnosed for over two and a half years and still my hands have no bony changes.  Also shoe inserts seem to work a treat for me for the sore feet.

     

    Hey - you go girl with the horses!  Congratulations on getting back on.  I've ridden a couple of times since my diagnosis and can relate to how far down the ground looks.  I can only imagine how difficult it has been for you with lyme disease plus RA. 

     

    I really want to thank you again for your comments!  I will definitely check out all the websites you gave me and will keep doing research on my own, as well.  Your email really lifted my spirits.  if you don't mind my asking, what state do you live in?  I'm in California and having difficulty finding MD's willing to work outside strictly westernized medicine.

     

    Keep in touch and let me know how the riding is going and if you have any dogs these days.

     

    Thanks again.

     

    Amy.


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