Thursday, May 31, 2012

mom of 6 childern

By mommy6kids Monday, April 27, 2009

7 years ago I had 4 childern at the time I was caring for my newborn daughter, I had a waterproffing business that I was expanding to poured walls. I lifted 100lb panels over a nine foot wall and tried to kick the guys who worked for me butts carrying them. My older daughters then 5 and 7 were into baby born dolls, I would take them to the mall and walmart with those dolls I had just as much fun with them as they did. I had a 4 year old son playing hockey I slept 6 hours a night if I was lucky I had so much drive I was go go go. Fast forward 5 years I have now 6 beautiful childern Megan 13 Savanna 11 Mark 10 Chloe 7 Phillip 3 and Gunner and his name says it all 2. First lets go back mabey 4 years I started being a little tired more than usual thought was my busy life. Then I had problems with the cold it made me hurt it was painful being cold still did'nt think to much about it. Then I started having horrable headaches/neckaches always had migranes but this was different my neck was stiff and hurt doc thought I must have a pinched nerve and gave me some tramadol and it helped but they never went away. By this time the ecomony was starting to fall apart in Michigan and I was 4 years into my marriage and having my 5th child. Well to make really long story short rather then loose everything we shut down packed up and decided to move to New Mexico my husband was offered a real good job and thinking I was trying to do to much and having five childern I would now stay home with the kids at least tell my youngest went to school. I then would study to be a midwife. I had my tubes tied and was not going to have anymore childen my last preganacy was really rough. Well I got to NM and low and behold I got pregant yes my tube was short and it came untied and healed itself. Anyways I got Gunner. The real noticable stuff started happening after I had him in feb07. When I had him 7 weeks early because I had high blood pressure and protein in my urine they again tried to tye my tubes and the short one ripped away and caused me to bleed internally, they had to give me lots of blood and I did not even see him untill he was five days old. After that I was never the same. I started having alot of pain in my hands wrists neck shoulders. I started seeing some specialist and they thought I had a autoamuine disorder. Then guess what my husband got layed off and I lost my health insurance. Well for the past 1 and a half years I have just gotten worse slowly. I started ordering tramadol online and taking it every day could not move in the morining till it kicked in. Things that a normal mom does and I enjoyed was a hassle like Bday parties taking kids to sports I thought it was just from stress. I was always tired and kept saying to my family I felt as if I had the flu everyday. I used to keep my house spotless even with all the kids I would pick out and Iron everything for them. I couldnt do it anymore. I started getting disorganized and very lazy or so I thought. Again just tired been through alot. I kept self treating with the tramadol I orderd online for the aches and pains. I am very resrved with medicine into the whole homopatic stuff. I have allergys to many medicines so I started treating stuff with them and some do really help. About four months ago I woke up with a major fever, chills thought I was dyeing ive been getting these little bumps on me and I pick at them anyways I went to er still have no health insurance, they said I had MRSA and kept me for 2 days and ran antiabotics. I went home on bactrim and got over it but the aches and pains got worse. Well three weeks ago it happend again only it started with a rash on my shoulder I went to er they said I again had MRSA on the skin and shingles. They sent me home on bactrim and alcovador. I took it and woke up worse and had a new rash from head to toe. I was hurting so bad so I went back to er and again it was MRSA and shingles but doc said to stop taking the alcolvador for the shingles and I must have a allergy to laundry soap he also gave me percocet a whole 15. I went home and would sleep for 4 hours wake up take medicine go back to sleep all of a sudden I noticed how swollen my hands were it was like I was dead I was that stiff my husband put me in the car back to er I went. My hand were bright red and spotted I was balling in pain and nurse said it was from being upset.(not true I had Steven Jhonson Syndrome whitch was life threating) As to not make this any longer got there at 12pm and still had not seen a doc by seven. Well there is these doctors offices here in Albuquerque called first choice that see you for 20 dollars if ya dont have health insurance and they opend at 8 so my husband put me in the car in the hospital gown and took me too one not even had ever been there they took one look at me and got me right in. My blood pressure was super high 200 over 110 I had a fever 103 I couldnt walk. She new right away what it was the bactrim she gave me steroid shots bendryl put me in a room and sent my husband for more percocet she kept me thre all day so she could watch to make sure what she gave me was working this doc cared t was unreal how much. Things then calmed down some she sent me home on predistone and I as well as her thought it would clear up. I went home and was feeling better untill I was done with the predistone again I woke up and could'nt walk or move, rash was gone though was psoriasis not shingles or mrsa as they said.  My doc had me come right back and she said it was not normal then I started telling her all my issues in the mean time she got my blood work back and sent me to see a friend of hers that is a rheumatiod doctor. She went online and got the recoreds for the hospital and said the tests were negitive for MRSA so a antiabotic almost killed me I did not need. I guess I just thought the docs at the hosptial would tell me if somthing was wrong. They would not listen to me when I tried to tell them what was going on before I got sick said we can only treat you for what you have right now but they were wrong. I am sharing all this because if you are somone who thinks you have RA or somthing is wrong do not just let it go a treatable disease almost took my life. We all have busy lifes and alot of us have childern but we have to take care of ourselves were no good to our kids if we are no good to ourselves. I am now taking just steroids and percocet untill they can figure out how to treat me. All blood work and x rays say RA. I now can barely walk my fingers are swollen and deformed my ankles are swollen, no skin left on my hand and feet from the steven jhonson, and icant even care for my 2 youngest with out help.I can not even stand them sitting by me, It makes me so sad, the kids just don't understand manily the little ones and they are all acting up cause they don't understand what happend to their mom. The allergy to bactrim caused the ra which was already flaring to atack  even worse doc never seen damage happen so fast.

4/27/09 10:39pm

I'm so sorry to hear that! What a terrible story.  Take heart that you seem to be finally getting somewhere towards diagnosis and treatment.  I hope you get a really great rheumy. Soon you'll have more answers.   

4/28/09 9:31am

Hi Mommy of 6!

It's a real shock when we realize how sick we are, and that it takes time and patience to get things under control, and we can't just tough things out anymore - it's humbling, not to say terrifying at times.  You have started on the road to learning to take care of yourself in a different way, and eventually you will be able to help your children understand (and they may surprise you in the meantime, if there are little ways they can help you).

I'm only allergic to one main antibiotic,but have become 'sensitve' to a whole class of them - they don't give me a rash so it's not a 'true allergy' but I have panic attacks, which keep me from taking them.  The only class I seem to do well with are the tetracyclines (which are sometimes used to help people with RA who don't get better with the RA meds or don't want them). 

I did read of one woman who was on the go all the time and totally stressed out who became allergic to virtually all antibiotics and started going beyond that even.  When she learned how to take life more gently, some of those problems disappeared.  Maybe this will eventually happen to you. Stress can be very damaging, and sometimes we do it to ourselves without realizing it - it just seems 'normal' to us!

But in the mean time ... though you don't want to stay on prednisone forever, you may have to for a while (and make sure to follow any directions your doctor gives you about tapering off, because it's not good for your body to stop it suddenly).  I know what you mean about Percocet, I've had to take it after surgery, and sometimes when things get really bad. But it's just to help you while they figure out how best to treat your RA so that there will hopefully not be any more damage to you.   If it's making you too spacey, maybe you & the doctor can talk about adjust the dose just a little to where you're most comfortable.  The pills I have can be broken in half, and taking too much makes me nauseous (that's how I know if I don't need as much, or am ready to stop).  You may also get a major "hot flash" when you are able to slow down or stop it.  That's normal, so don't let it throw you.

You will find many people on this site who have had a traumatic time when the RA hits.  So please know that you are not alone!

Thank you for sharing your story...

Ellen

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By mommy6kids— Last Modified: 12/20/10, First Published: 04/27/09