Hi everyone. I am new here but I have had RA for almost a year now. I am 41 years old, a 6th grade English teacher, with an 11 year old daughter and 13 year old son. I just thought I would put this on a SharePost to introduce myself.
I had my second Remicade infusion today, and I have been really tired ever since. It sometimes feels good to go and just relax for a few hours without feeling guilty! I think that is the worst part of this disease for me so far. I have always been extremely active and I feel guilty when I have to sit and rest for a while.
I do find that I am in constant pain somewhere all the time. I hear people talk about flares and I don't really understand that because I hurt all the time. I guess that is because my RA isn't controlled yet. Then there are other people who sound like they are totally disabled. I am not there either. I just fight through the pain as best I can. I don't look any different aside from some swollen joints and nodules on my feet and right collarbone.
Anyway, sorry for the rambling, really just started typing to introduce myself.
Hi, Krista,
Sorry you have RA, but you have come to the right place to ask questions, share your experiences, vent and/or get support. There are a lot of newly diagnosed people members here. I have a friend who gets Remicade infusions. It works well for her, but she has been on it for a long time. She gets the infusions every 60 days. If I see her this weekend, I will ask her how long it was before she started feeling better. I see you take MTX, also. Did your doctor ever give you any prednisone to get the inflammation down, or any anti-inflammatories?. Hang in there, Krista. I know it takes a long time to get the meds right. That just seems to be the nature of the beast. Fatigue is a real bummer. I work in an office and when I come home, I cook dinner for my husband and I, and then hit the couch. I should be exercising, but I am trying to get my meds right at the moment, too. Have you tried doing stretches when you get up in the morning. If I remember to do that, I have a much better day. I hope your fatigue and pain improves soon. I am rambling here, and I apologize. Long day!
Blessings,
V