Feeling alone with my RA

By Tresa Sunday, September 02, 2007

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So, here I am wondering why this RA of mine makes me feel so alone at times. Especially when I am on my Methotrexate days. Its hard to socialize when your tired, and in pain. No one wants to hear about it either. Most of the time they dont know what to say to you and the subject gets changed and you're left feeling even more alone. So, I stay home...not that I feel like driving or going out. I guess my point is more like, the rest of the world seems to keep on going while I am here feeling lousy and ...ok...a little sorry for myself! Embarassed Cant help it, I didnt ask for RA, it came to me, no invitation, no warning, just a big Hello, here I am...deal with it.

I am dealing with it little by little. I have a good Rheumatologist, although his office staff could use some compassion towards the patients that call in with a problem... Tongue ...I am new to this RA and dont know the answers to everything!

I take my meds like I am supposed to. I go to water aerobics for good exercises. I do stretching exercises, and I try to walk more than I used to. I try to watch my diet, but for some reason, I crave chocolate chip cookies ALOT! ..I'm not even picky about them-they can be in ice cream or just be the dough ( not baked)!!! hahahahaha Grin EOE for chocolate chip cookies!!

Ok, enough for now, have got to go take a nap! I am exhausted. Take care, Tresa

Comments (6) | Add comment

ragirlbetter

9/ 4/07 9:45pm

Tresa, I read your post and I was where you are now, but now I feel much better. We must talk. Talking helped me tremendously. You can e-mail me if you want personally. aliciaowens111@sbcglobal.net

Tresa

9/11/07 9:28pm

Thank-you for listening! I appreciate the support. I am so glad you are feeling better. I would love to know what has helped you. I havent met very many people with RA yet but I am looking forward to it. Thanks again for the support. Take care, Tresa

kiteclimbers

9/ 5/07 9:58pm

Hi, I felt the exact same way you sometimes feel, My Doctor was to the point and direct with all his answers to my questions and at times it seemed nobody cared about my pain, When he came into the room he had a smile on his face took care of business and left for the next room. I said to myself WHAT ABOUT ME AND MY PAIN, YOU GET TO GO HOME AND BE, AND I LEAVE IN THE SAME CONDITION I CAME WITH, PAIN !!! I know now in My case I was partally resentful of healthy people, Why me, what did I do To deserve this, I felt very sorry for myself and the life changes I was going to have to deal with, the pain was bad to the bone. I was on 14.5 methotrexate and had a sed rate of over 250 at one time. That was 2003 now in 2007 I am as healthy as ever. On "0" meds only folic acid, I now am training for marathon #4 all my running started after RA, Before that I was Just a low active person that got my exercise from getting into my truck to go to work everyday. My story was just published in a running magazine, For me without battling RA I would never be who I am today. I will say to you to be possitive and you never know the magic it will bring to your life RA's triggers the on and off switches are there I belive, but Im not a doctor just someone who cares and very well understands your feelings and your pain. STAY POSSITIVE !!!!! IT WORKS.

Tresa

9/11/07 9:34pm

Thank-you so much for the support! I know that feeling of resentment too! You have had days like mine, well, except for the incredible running part! Big Smile

Your experience had me in tears--you did so good!

So... staying positive and moving is key to improvement. I am trying, and thank-you for sharing, it means so much to me. Take care, Tresa

lisa long island

9/ 7/07 7:49pm

Hello, I am 33 and have ra. Somedays I have a pitty party most of us in RA land do. But there are more times than not that I am thankful. Today i was able to reach all the way around my back to hook my bra. Doesn't sound like much but its a big deal because this time last year i couldn't. I have people in my life who aren't as sympathitic to me as i would like but they don't really understand the daily pain and fatigue, and now i am glad they don't. I wouldn't wish this on my worst enemy. That's why I came looking for a web site full of people who understand and relate to me and don't even know me. We all Know ra and that this is a great place to get support and advice and vent and cry. My Aunt and i refer to ra as the invisible disease, because if i were wearing a cast people would care more because they could see "the pain". I know its hard right now but try to find a way to look past yourself and help someone else. I find that by having Ra I am soo much more sympathic to other people. Its a blessing and a curse. Hang in there I'll say a prayer for you.

Tresa

9/11/07 9:41pm

Thank-you for sharing your experience with me and for the support. I appreciate it. I love the reference to "RA Land", and I am glad I am here. I am learning more and more. I understand it is the little things sometimes to be grateful for. Congratulations on the reaching, I have just begun to understand how important that it is, and how quickly it can go! Thanks again for the support, take care, Tresa

Feeling alone with my RA

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