Thursday, May 31, 2012

funny story

By Sue Saturday, August 09, 2008

Hello everyone.

I have been away! I went to my mom's house to rest and it was wonderful!!! Well one day my mom, Aunt and I went out to eat. Well you know how when you sit for awhile that when you get up you can not just jump up and walk.

So I say to my mom I have to go to the rest room. She says oho ok I will come with you.

And with that she gets up and takes off! lol I am now trying to stand and walk and she is on the other side of the room heading towards the bathroom. My Aunt says, Where did she go? She took off and left you in her dust! LOL I start to laugh as I try to take my fist step and catch up with her.She never looked back for me! LOL she just took off! So,  There she is holding open the door waiting for me. I get to her and she says. I am so sory I forgot and I thought you were right behind me! Well all I could do is laugh. My mom walks like it is nothing and here I am trailing behind!

See with RA you have to laugh at times.

Spending the week at my mom and NOT being in all this pain just showed me that I am doing way to much at home, and I am under to much stress. With her I had nothing to do but take care of me. Once I got home I was non stop catching up on what was not done at home while I was gone. I have to learn to let things go, but it is hard when you are not use to living this way and you get so mad when things do not get done.. I am under so much stress at home. but what do you do?, you can't just give up your family and walk! I do know I am going to be going to my mom's again for a rest.

While I was gone my RA doc called to tell me I am going to start my IV treatment soon and things that they need to go over with me. I do not know if I want to do this. I mean, if by taking this new treatment how do I know that by still doing house work and being under stress it will work. Or do I have to learn to chill out and let things go? So now I am unsure if I want to take this new treatment.

I wonder if you can say NO.. and wait.. Then again I can not go through my life at my mom's who does not let me do anything!

I fear the winter and getting sick. The flu hits me hard when I get it. I am down for a long time. I don't know what to do now..

Remistart
8/10/08 10:17pm

Yes, Sue I'm new to this 'social club' but I'm learning that RA does force many options and choices upon us; over and over and over again. It has to be difficult. I'm already starting to realize the stress of decision looming before me. I was thinking if I could just dump this awful task on a trusted family member or friend saying "Here you decide;" it would get me off the fence-straddle;

I'd not have to worry that I made a wrong decision. Of course, then it would be hard not to play the blame game when you wound up more 'damaged' and/or worse off then ever before. No one would want to assume the awful responsibility, would they? Ultimately, as adults seems we're pretty much stuck with decisions concerning our own lives mostly, alone. At least, here, however, among members we can help each other make informed decisions which seems indeed, helpful.

Then again, maybe, maybe, we just have to gamble, roll the dice and hope for  'luck' and blessings.

Sue, I wish you that ...blessings and luck as you anguish over yet another decision. My thoughts and best wishes will be with you, pretty angel-face girl.

 

Reading how you are so able to drop out of obligations while at your mom's home I was thinking how we all sometimes feel like doing just that. *Splatto~!Tongue out

I couldn't help but recall an anonymous obit that I read years ago. I will share it with you because I loved it so~! Hope it brings a smile to all.

 

"Dear friends I am going where washing ain't needed; nor cooking or sewing;

where everything there is exact to my wishes, 'cause where folks don't eat, there's no washing dishes; in heaven forever loud anthems are ringing, but having no voice I'll steer clear of the singing; don't mourn for me now, don't mourn for me never, "I'm going to nothing, forever and ever!!!  Amen."

 

8/11/08 10:39am

Hello,

Thank you for all your very kind words of support and understanding :).

I also wish you many Blessings and good lucky on all your difficult decisions with your RA. Thank you for sharing that prayer with me. :)

 You know, When my sister found out what I went through when I got home, and the many things that were not done she became very anger. She said to me to just move out and go live with my mom. That the stress of my home and caring for my family is going to kill me. My sister has no children to take care of, nor to understand what it is like to have kids to take care of. It is just her and her husband. What she does not understand is what would kill me is to lose my husband and kids. dogs.. My life here in my home. So last night I said to my mom,  I am not alone in dealing with RA and taking care of a family. We all can not just walk away from our families to go off and sit like a blob and do noithing. Life is not to be like that. Yes I will come when I can and rest. In Sept my mom is going away and my husband and I will go there and dog sit for her. Then WE will have a little get away that will not cost us anything.

My sister just does not understand how you can not just walk from your life, your kids and rest forever. To me that is not living my life. I use to do it all. I was the stay at home mom who did everything for there kids and husband. So what I have to learn Is I can not loner do all of that. It does not mean I have to give everyone I love up to go sit like a blob... Life is stressful.. family can drive you crazy always asking "mom" where this is or that is.

I will have to really think before I take this drug. I have a feeling in the end I will try it.

I want to live a full life and not sit like a blob and do nother..

 

 

 

8/11/08 10:40am

Hello,

Thank you for all your very kind words of support and understanding :).

I also wish you many Blessings and good lucky on all your difficult decisions with your RA. Thank you for sharing that prayer with me. :)

 You know, When my sister found out what I went through when I got home, and the many things that were not done she became very anger. She said to me to just move out and go live with my mom. That the stress of my home and caring for my family is going to kill me. My sister has no children to take care of, nor to understand what it is like to have kids to take care of. It is just her and her husband. What she does not understand is what would kill me is to lose my husband and kids. dogs.. My life here in my home. So last night I said to my mom,  I am not alone in dealing with RA and taking care of a family. We all can not just walk away from our families to go off and sit like a blob and do noithing. Life is not to be like that. Yes I will come when I can and rest. In Sept my mom is going away and my husband and I will go there and dog sit for her. Then WE will have a little get away that will not cost us anything.

My sister just does not understand how you can not just walk from your life, your kids and rest forever. To me that is not living my life. I use to do it all. I was the stay at home mom who did everything for there kids and husband. So what I have to learn Is I can not loner do all of that. It does not mean I have to give everyone I love up to go sit like a blob... Life is stressful.. family can drive you crazy always asking "mom" where this is or that is.

I will have to really think before I take this drug. I have a feeling in the end I will try it.

I want to live a full life and not sit like a blob and do nothing..

 

 

 

8/11/08 4:05pm

'Oh, nooooo, Sue  ...the horrible, dreaded re-post '...LOL

Been there; done that Surprised 

*I guess there's no way we can edit or remove these mistakes here either, huh?

8/11/08 4:10pm

oho my goodness it posted twice! LOL WEll I think that calls for some ice cream I have been trying not to eat...

Lene Andersen, Health Guide
8/11/08 7:35pm

You're right - that is pretty funny! Glad you had a lovely day out with your mom and your aunt.

 

Every day, I struggle with keeping myself from doing too much. I know that I'm a making the pain worse, but things have to get done, don't they? And the question I keep asking myself is well, do they? Will the world end if I don't do X, Y and Z and I'm pretty sure that the answer is no. Still, I can't figure out how to take five minutes in the morning to make a plan and do a sort of triage to determine what gets done first and what can wait. Some days, I question my own intelligence.Smile

 

I'd recommend that you do the best you can just get as healthy as you can and, as I'm fond of saying, big problems need big solutions. I can tell you this: I started Humira a year and a half ago and it's made me feel healthier and have more energy than I've had in years. For me, it's absolutely worth it. Feel free to e-mail me privately if you want to talk more.

 

8/12/08 9:07pm

I think some time off would be wonderful.  Would your mom consider adopting me?  I'd like a few days of someone else taking care of me once in awhile.  I too was a stay at home mom who did it all, not always very well but that's another story.  Luckily, now my children are mostly grown up, I have one son a senior in high school at home.  But all three of them learned some important lessons about taking care of a home early on when I was very ill.  The incredible fatigue on top of the pain was crazy.  But if I had still been able to do all for my kids I would have but instead they learned to do laundry, garden and cook.  They all learned about themselves too.  They learned what household chores they really enjoyed or at least didn't mind doing and which ones it was better to pay a sibling to do.  But regardless, I was the type who would probably not have ever allowed them to do some of the things they tried because I thought it was my job.  Aslo, I have learned an incredible amount about patience.  I have to have patience with myself to get things done as I can not as I think I should be doing them.  Patience with others, do I really know how they are feeling on any given day?  I knew I needed to learn patience but I wanted it right away.  Now it seems nothing gets done right away.  Laughter is a good thing, the more you can laugh at yourself the easier some things will seem. I often laugh at myself for trying to do things I know I can't but am just stubborn enough to try.  Usually, I end up breaking the dishes I try to pick up one handed.  At least it sometimes earns me a meal out!Tongue out  Hang in there.

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By Sue— Last Modified: 09/03/10, First Published: 08/09/08