Remistart

By Sue Wednesday, August 13, 2008

Hello,

My insurance co will not pay for all my Remicade, so I have to pay 20%. When I was told by my doctors office how much I would have to pay I almost fell over. So they gave me informaion on Remistart. Anyone do this? I now have all this pain in my lower ack that I can not be on my feet for to long without so much pain I have to pull my knees to my chest and not get off the sofa for hours. God what is this now, my RA going into my back! I am so tired to. and something is going on with my eyes. I can not see as well as I did..  very bad day and I am fed up..

does anyone know about this drug?
8/14/08 10:40am

I am on the Remistart Program. Go online and get ALL info you can. Your Rheumatologist office should help you with this.....mine did......Remistart actully called me and I got approved for funding up to 8 infusions a year. Not 100% funding but enough to balance out with my insurance. A miracle for me!  They told me this program would last a year and then next year, they would have other programs go on.  Always some kinda help going on with Remistart.  So, I do this now and I filed a form I got from my RA doctors office and sent my Statement of Benefits from my insurance company along with the form to Remistart.  Just waiting to hear back from them.  They are really nice people or they were to me and that really helped because when you have to hang your head and tuck your tail between your legs and ask for help...any help.........and especially financial help (I have a real problem asking...I am stubborn as they come)then it's good when the person on the other end of that phone treats you like people. Good luck and God Bless and keep sharing.  

8/14/08 11:30am

thank you for the information. I just got off the phone with my RA doctor and they have free Celebrex for me (thank God) and the Remistart app for me to fill out. So I am going there today to get it. I have not had my celebrex in a few days and I am in so much pain. I am going to my Daughters new school today and I am trying so hard to cover my Lupus face and to walk as normal as I can. It is a big school and I hope i can make it through it. Then off to the doctors to pick up my celebrex and I am taking water so I can take it as soon as I get there.

WEll I am off..

Hugs!

Sue

8/14/08 7:29pm

Hello, Sue I hope you are feeling better! I am kind of going through the same thing with my insurance, for my Humira they won't pay it in full I would have to pay 20% also. I am just afraid that I might not be able to do the humira injection because I can not afford it, it just seems that I am in more pain now then before I can not stand for to long or sit for to long I am going crazy I don't know what to do! I know I'm limited but I can't stand this anymore!!!! and it makes me so ANGRY!! My doctors office is trying to see what they can do for me, so they are calling my insurance but I don't think that's going to help me if I have to pay for this! So, now I have to wait for the doc office to send me a form for me to fill out and sign so they can send to the insurance office! The only good news I have that my liver levels came back fine! Sue, I really hope that you get better and I hope to hear from you soon!

Anonymous
Anonymous
3/10/09 4:25pm

Humira has a co-pay plus program that provides financial assistance.  You should check this out.

3/10/09 6:59pm

thank you..

sigh..but my heart rate is to fast and I have to go back to my Prim doc and talk to him about this, and get an ecocardeogram. My Ra doctor said that it is RARE but, RA can damage your heart valves. With my heart rate being so high he wants to make sure my heart is ok. Before he can do any treatment. If there is a problem then he would have to work with my heart doctor on what treatment he can give me.

Yes I am scared to death!!!

So right now my RA treatment is on hold...

 

sue

8/22/08 10:39pm

Sue,

I am truly fortunate to have excellent insurance to cover my biologics for the past 2 years.  That has been my motivator to drag myself to my job for the past seven years of this disease even when I was on a walker.  I also noticed that my eye sight had changed, but chalked it up to being over 40.  About 8 months later, I changed primary care doctors and they decided to do bloodwork.  My cholesterol, and Tryglicerides were so high they thought the lab made a mistake and had the test redone. My blood sugar levels were also high and I was diagnoised with diabetes. I nearly fell off the table . . . started taking oral meds and  immediately my eyesight returned to normal.  I felt like an idiot for not alerting my doctor.  The doctor confirmed that they Prednisone that I had been taking for 18 months to control the RA was the culprit.  
So you might want to see you primary care doctor for bloodwork.   I had the terrible back pain (felt like it was broken) too last summer . . . it turned out to be Urinary  Tract Infections (6 to be exact) from high blood sugar levels . . . another thing I didn't know.  I should have gone to nursing school! Take care of yourself!

 

Angie

Anonymous
Anonymous
9/18/08 1:44pm

Hi.

I am a Rheumatology Nurse that does Remicade infusions. I just talked to reps from a local infusion company and they told me about the RemiStart program. Centocor is the company that produces Remicade. Go to centorcoraccessone.com and you can find several programs including Remistart that help with paying for your infusions. You can also call 1 888 222 3771

Anonymous
Anonymous
4/ 9/09 3:09pm

I feel for you. My full time job makes me pay 3000.00 into my plan. As I rely on health grants, which have now slowed (economy, hum), anyhow, the remicade is only (mouse protein); so I've been told, why would it cost so much for this cheap miraculous juice?! I've just been approved Remistart, but can't seem to get my benefit card from them. Good luck to the both of us.

Anonymous
Anonymous
5/ 3/09 11:32pm

I have had 3 infusions and finally have qualified for the rebate program.  I am having problems using the debit card they  sent me.  No one will accept it without a pin number, and it will not work as a credit card.  I hope to use it to settle a portion of my hospital bill.  Has anyone been successful using the card?

Anonymous
Justin
5/26/09 10:48pm

I just sent in my first eob and they denied it. I've had 2 and my insurance won't cover any of it so I am pretty freaked out considering the bill is over 6000.  Any suggestions?

Anonymous
Anonymous
6/ 1/09 2:32pm

I have been able to pay any bills online that will take credit card pmts. also in stores, you have to run it as credit not debit I havent tried to get cash back. If your Dr takes credit cards they will take it. I was able to get 10% off at My Drs by paying balance in full I had to ask for it though. Good Luck..

3/ 8/10 12:48pm

I found out today that the card will only work at your Dr's office.  You can no longer use it for anything else.

 

I pay my son's copay up front so I don't know how this rebate will work for us now.

 

My son has Crohn's but I just saw this post and thought I would post FYI.Laughing

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By Sue— Last Modified: 03/16/12, First Published: 08/13/08