Alone with RA (and my cat) forever...? O_o

By Pixxiprisci Thursday, June 02, 2011

Maybe I'm just having a bad flare up day and the depressions hitting me hard today, but I'm only 26 and feel like I'm going to be single forever with this disease, and my cat (Artemis). Its very frustrating cause my hands and feet look deformed but the rest of my body looks healthy but feels as stiff as a corpse. I've had this disease for more than 15 years but its killing me more and more as I am in the first quarter of my life and recently broken off with my ex of 3 and a half years. I feel like dating is pointless cause no ones going to want to understand this disease with someone they've never met and I dont want to deal with my friends because they dont understand no matter how long they've known me. Maybe I'm just being annoying but these thoughts run through my head all day long and the thought of me ending up in a wheelchair is something I'm terrified of but understanding that I might not be able to avoid. I already feel like people see me as a slightly deformed swollen walking "healthy looking" person but deep down I see an ugly person with an even uglier future. I wonder if people out there with RA feel this way at times? I understand that one day I will smile again but these up and downs of pain both emotional and physical seem to be getting worse. I feel like I'm the outcasted 26 year that should be loving life but can't. Are there others that have gone through this? I'd appreciate any suggestions or thoughts. I hope you all stay strong through your battles and not end up or over come my situation.

V, Health Guide
6/ 2/11 8:52pm

Hello, and welcome to MyRACentral.  We have a lot of members here of different ages with different challenges, and we do understand. I did not have RA at a young age, but I can relate to your statement about not explaining to friends.  I have found that the good friends stay, and the not-so-good friends go, and that is okay. 

 

You might want to read:

 

healthcentral.com/rheumatoid-arthritis/news-459765-98.html

 

It is important not to isolate yourself from friends and family. You need support, especially when you are flaring. 

 

I am old Smile, so I was already married when I was dx with RA.  My husband has been so wonderful to me.  He is my best friend and my biggest supporter.  My other relatives though...not so much.  My mother-in-law thinks I am a hypochondriac, my folks are elderly and live with me.  I don't think they can get their mind around the fact that they can walk better in the mornings than I can.  They just sort of look the other way, I think, and hope it will go away.  If you have people like that in your life, you need to see it for what it is and not waste your prescious energy thinking about why they are the way they are.

There is nothing wrong with you; there is everything wrong with them. 

 

I have developed an attitude of gratitude for the blessings in my life, and I have a way of avoiding those people who are not kind or understanding.  I don't talk to those types at all about my illness. I don't need the aggravation, and neither do you, sweetie.

 

Please try to keep yourself open to relationships.  Dont' go actively looking. Instead, try to enjoy your life and engage in activities that bring you joy.  It has been my experience that we meet the nicest and most interesting people when we aren't looking. I have actually met some wonderful people who became friends in the grocery store, at church, and at seminars.

 

When RA is flaring, it is hard not to be depressed. Actually, I am always a bit depressed when I flare.  I think it is normal.  The depression always goes away when I feel better.

 

Do you feel as though your RA is under control?  Do you have a good rheumatologist?  BTW, you are a beautiful young lady, and you must be a good person, because you like cats!  I have three:  Ted, Callie and K.C.

 

Hope you feel better soon.

 

V

 

6/ 2/11 10:53pm

Thank you so much for the response and encouragement and you don't look old at all. And with a spirit like that you have to have the most kindest youthful and nicest heart and spirit than anyone I've known with RA. I try to go out and I'm not that good at socializing... I'm shy but I do try to go out at times. The whole theory of meeting people when you're not looking is very true and I'm trying to do the things I used to love; (sudoku, traveling around town, movies etc.) but its exhausting. I just don't want this disease to make it more exhausting as I get older and its scary. I'm gonna try and fight through this, even if I find it pointless, but I will continue to try. Congrats for being so lucky to have such a good support system around you and thank you for being so kind to write back to me. I truly do appreciate someone like you for taking the time to write to me. Thank you V. 

6/ 2/11 11:02pm

V is right i have ra  an had it for a long time i think 26 years  i know how you feel i choose not to be in a relationship now im 42 now my kids are not home an yea it gets lonely  but you are in the best part of your life even if you dont feel like you  are mr right well come alone an when he does well except you  for who you are  you have some much to give an to share  stay close to your family an friends an do things that make you happy a man that can see past your outside well catch your heart  an please find a doctor that well help you with ra  god bless an take care Wink

6/ 2/11 11:11pm

Thank you suzzy! Not that I want to depend on a man or anything like that. It'd be nice to share my life with someone yes, but I feel like my generation is so weirded out to hear someone my age to have arthritis. Its like to them theres this misconceived notion that you have to be a grandma to have arthritis and its so wrong and disgusting to think that way. I'm sure guys my age wouldn't find it so "sexy" but yea, your right... maybe that one guy will look past all that. Hopefully theres not two girls with RA where ever we may meet at. :p lol I'll have to pull out the big guns to get him in my direction. Its been a rough couple of months but thank you for the words of encouragement. I truly needed it and appreciate it. 

6/ 2/11 11:05pm

Oh and I'm just starting to get my RA back under control. I've been on Naproxyn 500mg two times a day for a long time but after no insurances for two years I just took Aleve when I felt pain. I just got a new job and am finally seeing a new rheumatologist. I got a bad painful ulcer from taking it for so long without being watched so now I've been off of it cold turkey and I'm 95% sure this flaring and swelling is from the lack of NSAID. I'm taking prilosec to help the ulcer and will see what new medz he'll suggest in two weeks. hopefully it'll be back in control and maybe I'll be back to my old self. 

6/ 2/11 11:08pm

thats sounds great i wish you well an i caint wait for you to be your old  ooops young self again Smile let us know how its going

V, Health Guide
6/ 3/11 8:23am

So happy to hear you are seeing a rheumatologit now!  You will feel a lot better about everything once you get your RA under control. 

 

BTW, thanks for saying I'm not "old". Laughing  My mind is still young, and I thank the Good Lord for that.

 

Blessings,

V, Health Guide
6/ 3/11 8:23am

So happy to hear you are seeing a rheumatologit now!  You will feel a lot better about everything once you get your RA under control. 

 

BTW, thanks for saying I'm not "old". Laughing  My mind is still young, and I thank the Good Lord for that.

 

Blessings,

V, Health Guide
6/ 4/11 12:15am

How are you doing today?  Any better?  I hope you have a good weekend.  If you are physcially up to it, a walk in the park or some window shopping might be a good thing for you to do to get out and about.  Your kitty probably thinks it would be a good opportunity for you to look at kitty toys. Wink

Lene Andersen, Health Guide
6/ 6/11 8:14pm

First, take a deep breath. It sounds as if you wrote this post when you were feeling quite desperate and I completely understand how a recent breakup and RA can make you feel as if you're in the depths of despair.

 

I've had RA since I was four, started using a power wheelchair when I was 16, so I know where you're coming from. Being young with this disease is hard. I want you to know that if you do have to have RA, now is the time for it. I see from your profile that you're only taking naproxen, so my first recommendation is that you see a rheumatologist as soon as possible to get on a medication to suppress your disease. The sooner your RA is treated, the better you'll be able to protect your joints and that is going to keep you from deteriorating further. If you have financial constraints regarding a medication, we have a post on financial assistance programs that may help subsidize the cost for you. You may also want to check out our post on preparing for your first meeting with the rheumatologist - I know you've seen rheumatologist before, but it can't hurt to prepare. You may also want to read up on being a good advocate for yourself to make sure you get the treatment you need.

 

In the last couple of years, I have had two separate doctors tell me on two separate occasions that people who live with RA today typically do not end up in a wheelchair. There is so much hope in the treatment of RA - check out my post on an RA forum about the new treatments I attended about six months ago. There's a link to a webcast from the event and I highly recommend you take an hour with a cup of tea and watch it. It will make you feel hopeful again.

 

In terms of the dating. Having RA since you were a kid does a number on your self-esteem. Being newly out of a relationship and making the move to a completely different environment will also make you feel even more lonely and sometimes undesirable. I felt like that, too, for a long time, but there are people out there who will see you and not the wrapping. People who will want to be with you so much that the disease doesn't matter. We have a couple of posts on love and RA - one on love and sex and the other about finding love when you think you are too wrecked to be loved.

 

I'm really glad you found this site. When you're feeling like crap, it is so important to find other people like you and we have a very supportive community who will circle the wagons around you and help you get where you need to go. Please keep us posted on how you feel.

Lene Andersen, Health Guide
6/ 6/11 8:16pm

p.s. your cat is adorable! I used to have a black and white cat and I'm pretty sure that color scheme is my favorite. It adds such a lot of character. My present cat is an orange tabby with white and she's wonderful, as well. Still, the tuxedo cat has a certain something, doesn't it?

6/ 6/11 10:23pm

poppin to see how you are doing ? its getting well its hot here we hit the 101 dergree today hope tour feeling better god bless take care

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By Pixxiprisci— Last Modified: 10/26/11, First Published: 06/02/11