Just Starting Cimzia--Anyone Have Any Feedback on This Drug?

By Suzie Tuesday, June 22, 2010

I just started Cimzia injections last night, and I'm already having a negative reaction.  However, that may be from having been on Prednisone for the last couple of months and titrating down off of it.  I have tried other RA drugs with various results (Remicade, Orrencia, Rituxan, Humira, Enbrel, Plaquenil).  I don't know much about Cimzia and would like to get feedback from other folks who have actually been on this medication.  At the present time I am also on Methotrexate.  Thanks!

6/23/10 2:53pm

please explain "negative reaction." 

 

I am not taking currently taking Cimzia but I will help research side effects and whatnot. 

 

 

6/23/10 3:04pm

I feel like I'm on the upswing of a bad flare--VERY swollen elbows, wrists, fingers--and I'm also having some intestinal difficulties and a bad headache.  Of course all of this could also be because it's 100+ degrees and humid here in Texas. 

6/23/10 3:52pm

Hey, I live in Houston..  It has rained the last 2 days here. I feel ya on the yuckies!!  I call my friend down the street (an extreme newbie to RA) to let her know when my bones are calling for rain.. LOL

 

Sometimes the biomeds can trigger "flare up" symptoms as your RA (being the good little soldier it is) will gather all it's muster to do it's job. Also which dose are you one.  The first couple weeks are at double the strength (400mg) where maintenance doses are at 200mg.  Joint swelling and pain is one of the lesser side effects that will usually subside.

How intense is the intesintal stuff or the headache?  Sinus headache with pressure along with mild stomach upset (with diarhea or constipation)are also some of the lesser subsiding side effects.

 

If the headache is migraine type with blurred vision or you start to run a fever with your joint pain, call your doctor to let him know you have started with some of the more serious side effects. 

 

So it sounds like you have the new medicine blahs!! 

 

6/24/10 2:31pm

I live in the DFW area and have been taking Cimzia injections since August 2009.  It took a couple months for it to kick in, but so far, for me, it has worked wonders.  I really haven't had side effects that could be attributed to Cimzia, but I do have stomach problems and have had a headache for the past few days.

 

I have the occasional bad day, but Cimzia seems to have given me my life back.  A year ago I wondered if I would ever be able to waterski or pull a weed again.  Today I can do most anything!  I hope given time, you will have the same results!!!

Anonymous
Ambro500
9/15/10 12:23pm

I am so glad to have found these comments. I am in Austin, Tx and have been on Cimzia for almost two weeks. I feel like I have been in a really bad flare, and am so confused because I am new to RA and thought the Cimzia was supposed to make it better. I generally have a very positive outlook, but was starting to feel quite down until I found all of your comments. Needless to say, it sounds like my increased pain and inflammation is just a result of the new medicine. Hopefully it will all subside soon. Thank you so much for sharing, it really helps! ~amber

1/ 4/11 3:14pm

Hi I startedcimzia for crohns 2 weeks back and still havent seen any difference when did you start feeling better

Anonymous
crohnie827
1/ 8/11 7:42am

I just started taking Cimzia as I will take my 2nd loading dose in 2 days.  I always have headaches (prior to starting Cimzia) so it's hard to tell but last week I had to incidents where I had blurred vision or an "aura type" situation.. I didn't have any migraine meds with me so I took tyleonl.  2 days later when it happened I took my migraine meds.  I should note that I haven't had these Aura type sensations in prob 5 years.  Is this a side effect of Cimzia?  I will be contacting my doctor on Monday to mention this but was curious if this goes away of if I need to stop taking this med.  If so.. I've run out of meds that work for me and this was my last option before surgery....

2/12/12 5:16pm

I was just reading posts on Cimzia and was wondering if you are still on it? I know this post is old... I had very very bad reaction to Cimzia.

6/24/10 9:49am

The first three sets of shots gave me reactions, then it calmed down and things were going well. I've developed gi symptoms (most likely not related to the cimzia) and now am off it until a diagnosis is made -- and reallllly feel it.  It was working, anyway! Hope you feel better.

6/24/10 10:41am

I have been on Cimzia for about 9 months.  With every shot I felt better.  I don't care for the weight gain but with the new energy and ability to move I hope I can get the weight to come off.  The relief has been incredible. I wake up with a smile instead of a tear.  Unfortunately, I have started having some 'breakthrough' pain.  With every pain I am in awe that I used to live with that feeling daily.  Days now hold hope and promise and I haven't felt like that in more than 10 years.

6/24/10 10:43pm

I have been on Cimzia for 3 months. I have had no side affects but the shot itself burns like heck. So far the Cimzia is not working for me. I have more swollen joints than ever before. I hope Cimzia works for you. Good luck!

Anonymous
rena31771
12/26/10 10:59pm

I have been taking cimzia for approximately 6 months and just had adverse side effects show up about 3 weeks ago, I have developed thrush and a fungal infection on my body, it had been getting better, but it flared back up yesterday, I have not taken cimzia since 11/23/2010 and i do not believe i will take it again.

7/ 3/11 11:00am

I was on Cimzia for a year and a half.  After about 3 months i started getting hives.  My throat would start to close up.   I have never had hives in my life.  I went to the dermatologist and allergist and was told i was allergic to nothing.  I started Cimzia on Jan 2 2010.  My last injection was on April 10 2011.  All of my symptoms dissapeared after about a month.  I am on no meds now.  When i did try Remicade i got shingles.  I don't think i will try any other meds.  I hope this helps.

 

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By Suzie— Last Modified: 02/12/12, First Published: 06/22/10