Tuesday, June 11, 2013

Health Guides

Leslie Rott

Leslie Rott, Health Guide

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Sociology graduate student living with lupus and rheumatoid arthritis

Lupus and RA: A Frustrating Combination

May is both lupus and arthritis awareness month, which is convenient for me, since I have both illnesses.    I was diagnosed with RA first, and a few months later, the diagnosis was changed to both RA and lupus.  For me, the diagnosis of just RA did not speak to a significant number of my symptoms.  While RA did describe my... Read moreChevron
V

RA & Gardening: Is Your Green Thumb Twitching?

  The crazy roller-coaster weather has finally settled down to something resembling Spring in Missouri. The sun is shining, the wind is more gentle, and my green thumb is twitching!   In my previous life, before RA, I had a huge vegetable garden, and quite a few flowers planted here and there around the house. I also had hanging... Read moreChevron
Lisa Emrich

Lisa Emrich, Health Guide

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Musician, Patient Advocate, Author of 'Brass and Ivory' blog, and Founder of the 'Carnival of MS Bloggers'

PML Diagnosed in Autoimmune Rheumatic Diseases, Part Two

In a 2012 study, researchers examined the incidence of progressive multifocal leukoencephalopathy (PML) in patients diagnosed with autoimmune rheumatic diseases (ARD) such as RA, lupus, or Sjögren’s syndrome.  Accessing the FDA’s Adverse Event Reporting System (AERS) database from November 1, 1997 to March 31, 2010,... Read moreChevron
Lisa Emrich

Lisa Emrich, Health Guide

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Musician, Patient Advocate, Author of 'Brass and Ivory' blog, and Founder of the 'Carnival of MS Bloggers'

Tecfidera and PML: Is there a direct connection?

How important is it to you to have full access to the same information neurologists do when it comes to medications, clinical trials, and post-marketing data from a pharmaceutical company?  Or full access to your medical files which include medical history, doctor’s notes, and testing results complete with reports? As patients living... Read moreChevron
Brad

Brad, Health Guide

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Living with Severe / Aggressive RA, Sjogrens and Addisons

RA in My Funny Bone?

So, I asked my Rheumy, if I get the joint replacements in my hands as you suggested, will I be able to play the piano? He said YES, I said that's odd, I never could before! BA DUMP BUMP! Sorry....... I told you, I have RA in my funny bone....   Well, that's not really true, in fact I think that is the only joint (plus the seedy bar down the... Read moreChevron