At one point she told me she believes I have severe burning pain in my knees, ankles, feet, wrists, hands and elbows, because I'M DOUBLE JOINTED! (Yes, she is a rheumatologist) I have had these symptoms for four years, x-rays verify a problem, I'm anemic and have a white blood cell count problem, everything I read points to RA. I've also been diagnosed with several other auto-immune problems. My question is: Have others had a difficult time getting diagnosed? I know I'm not a doctor, but my body is telling me there is something wrong! I don't have RA factor? but I've read not all RA patients do. Please share if you've experienced something similar!
Q: I have all the symptoms of RA, but my doctor has not diagnosed me with anything.
Answers (2)
6/18/08 11:48pm
Hi, melhut I know how you feel! I was having knee pain and swelling on both knee but mostly on my right my doctor thought I twisted my knee some how and I was on crushes for 2 weeks, then he send me to physical therapy for about a month, but the pain continued coming back then my hands I could not move them they were so stiff so then the doc thought I had ms so he send me to see a neurologist and everything was fine to get to the point it took him 2 years to rule out everything else before he send me to an RA doc. there she send me for x-rays and for blood work my levels for RA are really high and then she diagnosed me in about a month which was on April 29th of this year. We are all here for one another and support each other if it wasn't for this site I would probably would be going crazy now!!! so keep your head up high and good luck! when do you have to go see your RA doc again?
7/31/08 12:19am
I know how you feel. I've been hurting in all my joints and my rheumatologist said, "Well, you are getting older". I was 48. I had new labs done and today they all came back negative. They didn't do a Sed rate or the test for Lupus. I managed to get in the pool tonight and it felt really good. The water was 90 and loosened me up. I'm like you, I just want to know what's wrong so we can start trying to stop it. I'll keep praying for an answer. If you don't mind, I'll say one for you too. Good luck.
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By melhut— Last Modified: 12/25/10, First Published: 06/18/08
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