Wednesday, May 30, 2012

Saturday, July 11, 2009 Pat4lee asks

Q: What to do when Dr. reduces necessary pain meds??

I went to the dr. last week, he has reduced my pain meds down from 6 per day to 2 per day. I am barely able to function with the 6. What do I do? I have difficulty getting up and down without pain meds. His concern was the big scare about all the tylenol in lorcet. I do not like taking pain meds but it is needful if I am to get out of bed. Help!

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Answers (6)
Lene Andersen, Health Guide
7/14/09 11:47am

when you have a chronic illness like RA, it's important to develop the skill of being a good self advocate (you can read more about advocating for yourself here). I would suggest that you go back to speak to your doctor, tell him exactly what impact the reduction has had on your life and ask him to problemsolve with you. Talk to him about how you need pain meds in order to get through your day and ask him about alternative kinds of treatments that would give you what you need while addressing his concern.

 

Since the concern about Tylenol is the risk of accidental overdose, as long as you stay within the accepted limits, you should be okay. I'm assuming that you have a history of taking the medication as prescribed and that is something that you can remind him of.  Accidental overdose happens when people are unaware of the Tylenol in e.g., Lorcet and take other medications containing acetaminophen, like over-the-counter Tylenol or cold and flu remedies.  As long as you are well-educated about medication - and that's something your doctor can help you with - and you check with your doctor before you add other types of over-the-counter meds, it should be possible to manage the risk. If you suggest that to him, he may see the light and start treating you as a responsible partner in your care. As well, since the concern is about Tylenol, speak to him about substituting pain medication that does not contain Tylenol.

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7/14/09 2:45pm

Time to find a new doctor! JMO

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7/16/09 11:18am

This is quite worrying.  It seems to show that this doctor does not understand how to work correctly and safely with pain meds.  It is severely difficult, and can even be dangerous to reduce pain med dosage that much at one time, without any tapering.  

 

I am also being pressured ("encouraged") by my rheumatologist to reduce my meds, and I have been very worried about the question of tylenol damage for some time.  The issue is so complex, and it is not any exaggeration at all to say that the way this is approached and handled can either improve or destroy a person's quality of life.  You need to be reducing your meds no more than one pill at a time, per month.  At the same time, you could add something that my doctor prescribed, which is the time released morphine-sulphate at a low dose, taken just twice a day (lasts roughly 12 hours), in addition to a lower dose of the Lorcet -- but it's a bit irresponsible, and certainly very uncompassionate, to take you from 6 to 2 pills a day.  That big of a drop all at once can potentionally throw you into a bad flare, cause anxiety or panic attacks, or depression.  

 

I really would go back to your doctor and attempt to talk to your doctor about this.  Try to be calm and confident, so that he or she is less likely to condescend to you or treat you like that famous monster with whom the majority of us are hit over the head with sooner or later, the drug seeker.  Stand your ground, and speak with authority:  your life is not possible without adequate pain medication right now.  Ask him to prescribe another drug.  

 

I'm worried about the tylenol issue too, and my liver is now showing very slight damage.  I've long been frustrated that the drug companies ever decided to put tylenol into so many of these medications.  Why?  Tylenol certainly never did a thing for me.  Doesn't make any sense.  But we may be the ones to pay for their bad thinking.

 

The time release morphine sulphate does not have tylenol in it, and it is helpful.  It's actually fairly mild, but does last, and in combination with another med it really does help.  There's also something called Vicoprofen.  It's oxycodone combined with ibuprofen instead of tylenol.  I'm on a different type of drug now (stronger), but when I switched from vicodin to vicoprofen some years back, it really did work much better.  It's hard on the kidneys too.  No drug is without side effects, and we need pain meds in order to function.  It's a compromise.

 

I also take a supplement with milk thistle in it:  that's supposed to help detox and support the liver.  I'm hoping it can help a little.  Best of luck with everything.

 

Susan

 

 

 

 

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7/16/09 5:49pm

 

Are you SERIOUS?  This is not a sick joke, is it?  I would find a new Dr. IMMEDIATELY.

 

IMMEDIATELY.  Don't even bother with a doctor is is not only unprofessional - dropping down so much so quickly which can put you into severe emotional and physical withdrawal - but so CRUEL.

 

Check to see if it is because of your insurance.  Sometimes insurance companies wave the red flag to the M.D.  

 

I am so terribly sorry.  Lose him or her. NOW.  Make those calls, and cry on the phone and insist on getting in or go to the emergency room and be sure that this Dr. gets a report sent to him.

 

OUTRAGEOUS.  Same happened to me, only my Dr. cut me off EVERYTHING, just like that.  An atrocity.  I feel for you, and share your pain.  My email is dryharmo@optonline.net if you need help finding a Dr.

 

Warm hugs to you.  Hang in there.  You are not alone.

 

 

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7/16/09 10:55pm

THE DR. should have reduced it slowly, not cut out 4 pills at once! thats how you go into detox ,throwing up, swetting,shakes,lack of eating! - good luck

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7/17/09 11:37pm

I agree with everyone! Believe it or not, the person who chronically takes a lot of tylenol every day, is usually not the ones with the problem because your liver is use to that amount. At least thats what the pharmacists tell me! Talk with your M.D. about the amount of pain you are having & straight out ask him if he is not comfortable prescribing more pain relief or narcotics without tylenol ,then will you please refer me to a reputable pain clinic. Good pain Docs are great about prescribing high doses of meds without any tylenol for chronic pain sufferers.  Hope this helps!

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By Pat4lee— Last Modified: 10/20/10, First Published: 07/11/09