ronie and jackie:
just was sent this link to my work email account about what jackie's main concern was. and it was answered by people. so be it.
i see my wife just added something about nutrition as jackie said herself she can't afford to eat alot anymore in her own post because of lack of money and i believe also she offered a medicine that might help, or it might not, but it's cheap.
ladies, she might not have the progression you have with her diseases right now, but she has probably had more blood tests and more x-rays, ct scans, and more mri's in one year than you all have had in 20 years. they have used her as a guinea pig as i have been with her to all the rheumatologists she sees.
she was merely offering advice about food which all doctors have told her she needs the right food when battling any auto-immune disease, and then she additionally added later what her doctors have told her about sero-negative diseases. i see by looking on here she never claimed to say she was a doctor but what her doctors have told her. she has seen so many and i have been with her for each and every one.
not sure you know this or not jackie, but doctors disagree as well and they do alot!!!!! just because they have a md, or do or anything after their names doesn't mean a thing.
if you trust your doctors, good for you. she was merely adding in what she heard from quote unquote specialists that are in this field and practice in the quote unquote best hospitals in boston.
if you know so well your own disease by now, then maybe you should have just called your doctor or the pharmacy you get your medications from and asked if there would be any ill side effects from going completely off of them. you can also google, since you seem to say you research everything about your disease, plans that help with medications in your area. but not once did my wife deserve to be attacked that she is giving wrong information and is misleading others. if you don't like what people share on here, call the actual doctors that are treating you, like you said, you know what you have, and ask them what you can do for yourself. there was no need to blast my wife. and honestly ronie, you didn't help matters either from what i can see.
i think my wife's numerous doctors were right. if she wants answers on anything she should seek their advice or that of a pharmacist not the boards that do nothing but berate someone trying to offer advice their own doctors told them.