I've just started Enbrel (just took my 2nd shot today), and am wondering what experiences other people have had with it? I tried Humira a few months ago, and had a terrible, extreme reaction, which could have been allergic. (Mouth, throat and hands covered with painful white blisters, coughing, throwing up, extreme dizziness, extreme weakness, basically feeling like I was going to die).
I've resisted trying these drugs for years, and think they are very toxic and scary. But I'm desperate, have too much pain and fatigue to function, even with prescription pain meds. I feel that my whole life is just suspended, like I'm not really participating in life anymore, and can't accept that, so I'm giving the Enbrel a try.
And I'm starting to think it might be working. I seem to have a little more energy (that alone would be miraculous, as my fatigue has been just deadly for 2 years), and I'm walking a little stronger -- my hips are not screaming in pain. Can it work this quickly (one week)? What kind of side effects might I expect? When I took the first shot last week, I was outlandishly tired, even more than usual, for about 3 days -- I couldn't do anything but sleep. Is that the Enbrel? If so, does it get better?
Also, what about the immune suppression aspect? Do you catch colds or flu easily, and is that dangerous? My rheumatologist is not being especially understanding about my need to get these answers, a lot of answers and anectodal evidence. She just says, basically, that it works and to take it. She's got me pinned now, I'm sorry to say, as a resistant patient, just because I have fears about the toxicity of these TNF-blockers.
Has anyone else gone through this -- the combination of hope and fear? I would really appreciate hearing from you.
Thanks so much,