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Tuesday, November, 24, 2009
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methotrexate raised my daughters liver levels. What can she take as a replacement?

Bela's Mom
08/02/08

My daughter was diagnosed with JRA at the age of 22 months.  She has been up and down over the years, but nothing major.  From 15 on, it has been on the warpath, and there has been significant damage.  She has tried humira, but it stopped working after a year.  She has been on prednisone since age 17, right now 5mgs per day.  Her rheumatologist put her on Enbrel, prednisone, and 15mgs of methotrexate.  It didn't really work, so she upped the doseage to 4 pills a week.  That combination worked, but eleveated her liver levels.  She went back down to 3, and her liver levels went back to normal, so we tried the 4 pills again.  Her liver levels went right back up, so she has now been taken off methotrexate.  In a few short days, she has gone back to being in pain and constant fatigue.  Does anyone have any suggestions on what we should try?  Apparently she is just one of those few that can't take this medication.  The newer ones scare me.  Orencia and remicaid are scary.

 

Thanks

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Perry Tomlinson
Perry Tomlinson
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I allways beleive that there are   ...

Monday, August 04, 2008

HELLO BELA ,I THINCK IT SO SAD WHEN A YOUNG PERSON GETS THIS PAINFULL ILLNESS ,I DONT TAKE ANYTHING JUST WALK MY DOG 2 A DAY. DRINCK A BOTTLE OV    MONA . VIE A WEEK USE ONLY HIMALAYAN SALT BECAUSE OF ITS MINRAL TRACE ELLEMENTS ,HONEY AND CINNAMON .IF I DO GET PAIN 2TRMADOL ,WALKIN EACH MORNING LOOSENS ALL JOINTS UP I HAVE A LITTLE DOG SO HAVE TO WALK,ANYWAY IF ONE HAS TO USE DRUGS PYRALIN 500MG X 4 A DAY ITS A OLDER DRUG FOR THIS ILLNESS .ONLY DRUG I TAKE IS MINOCYCLINE 100MG 3X WEEK SO SOME RESEARCH FOR YOU,SHE MUST STAY HAPPY AND POSITIVE MIND OVER MATTER SO KEEP SMILING HAVE YOU HAD HER VIT D LEVEL CHECKED PREDNIZONE DROPED MINE SO TAKE 2 EVERY DAY D3 AND CALSIUM SO DARLIN STAY FOCUSED SHE CAN BEET THE PAIN HAPPY DAY TO YOU.BYE

dlhamaker
Monday, August 11, 2008

I just went on orencia rather suddenly without a chance of looking into it. I am on methotrexate but seeing no results. What are your concerns (beside the obvious that it's a serious drug) about Orencia?

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