Thursday, October 30, 2014

Friday, February 04, 2011 gordon bell, Community Member, asks

Q: What is the highest RA blood factor reading ever recorded? Is a reading of 1100 exceptionally high?

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Answers (6)
Lisa Emrich, Health Guide
2/ 4/11 11:24am

Hi Gordon,

 

I don't know what the highest Rheumatoid Factor (RF) ever recorded might be.  Here is the article at Lab Tests Online which discusses RF.  However, 1100 does seem rather high.

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gordon bell, Community Member
2/ 9/11 4:48pm

Hello Lisa

Thanks for your response. The RA factor numbers are very confusing with my first reading at a little over 500, the second reading going over 1100, with my last reading down to 500 again. All blood tests taken at the same lab. My Rhummy tells me a person with RA usually has a reading between 300 to 400 yet he can't seem to explain the high 1100 figure. Perhaps its because the RA has now gone into my lungs.

Best wishes

Gordon 

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Laura, Community Member
2/ 5/11 5:43am

when it gets that high and if you are meds is that the point for plasmaphoresis or with biologicals are they even doing plasma exhanges anymore?

 

Im new to this just starting methotrexate next week newly diagnosed.

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ronie, Community Member
2/ 7/11 12:21pm

Haven't heard about a plasma exchange since back in the 80's when Mom had one done.  All I remember is that it was short lived relieve. 

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ronie, Community Member
2/ 7/11 12:09pm

How the RA factor tests are read is confusing.  But a lot of the time the actually # is determined by which method the lab used to read it.  There is a titer test in which the saline is used to dilute the blood in the vial.  that is usually read in a ratio of 1:20 being normal. The first # doesn't change and the second is the indicator.  The other process of reading the vial is to use a light meter.  In whick they measure how much light can pass through the blood.  The RA antibody makes blood appear cloudy in this specific type of light.  This number is read in units such as 100.

 

Most doctors don't know which method is used and even with the titer test only the second # is received in the report since the first doesn't change. 

 

I know this sound confusing, and it is.  Over the years I have received many different readings to my tests especially if I change doctors.  They have ranged from 240, 85, 675, 1200, and 57 just to mention a few of the #'s. 

 

Sounds like a bunch of random #'s to me.  Might as well be a lottery pick.  But yes it does seem that 1100 is high.  Just keep track of your symptoms. the key is to treat disease and it's symptoms not the #'s.

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gordon bell, Community Member
2/ 9/11 4:58pm

Hello Ronie

Thanks for your response. Yes you are right, understanding RA factor readings are very confusing I' m not sure my Rhummy even knows. I was diagnosed with RA over 10 years ago

Best wishes

Gordon

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Momorris, Community Member
2/20/11 9:02pm

My brother had his first RA factor of 2700.  Now he is battling lung cancer (stage IV) and when they did his RA factor with his preliminary blood work, it was 4800. He was taking methortrexate at the time and prednisone. Now he gets chemo and ony predisone for pain. They tried rituxan, but he reacted as he did with remicade. I also have RA but low numbers, but lots of symptoms. I am best controlled with arava and enbrel. 1100 is also very high. Get treated asap...you'll feel so much better.

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gordon bell, Community Member
2/22/11 12:19pm

Thanks for your response. I am on Celeberex  - 200mgs - and Prednisone. I have now reached the point where I take Prednisone only when needed which is now not very often. Celebrex I find works fine for me but again I am very cautious and take it only when flareups occurr. As it happens Vioux also worked well until it was taken off the market, so one must always be aware of possible side effects with any medication.

Beat wishes to you and your family member,

Gordon    

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brobert, Community Member
7/ 8/11 12:38pm

My levels keep getting higher and higher.  When I was first tested it was 119 then it went to 179 then I got my results back today and it was 329.  I am starting methotrexate and I am praying it works.  But what pain medication help when you have flare ups?  When I get flare ups in my shoulder or my knee or feet it is the worst pain ever.  I have to wrap my arm to my body so it wont move the same with my knee.  I am on a lot of pain meds because of a bad back and opiods do not help at all with the flare ups and they last about 3 to 5 days.  What should I do?

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Cherri, Community Member
11/ 2/12 7:01pm
I have been on methetrexate for 13 years, 2years ago started doing humaria shots worked great but the last 6 months not so much. My pain is great can't sleep with the sharp pain on shoulder ,hands and feet. I'm going off methetrexate after 13years my hair is thinning bad these pills are mild chemo so I guess after so long your Hair would fall out Reply
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By gordon bell, Community Member— Last Modified: 05/07/14, First Published: 02/04/11