Monday, November 02, 2009 l3true2u asks

Q: Im so MISERABLE!!

Im so MISERABLE!!!

I was diagnosed in Jully of this year. I feel that ever since then, ive been the bitchest of bitches there is to be. I know the disease is wearing on me mentally as well as physically. And i think my attitude is also a side effect of some of the meds. But my gosh, i feel unbearable. Im getting sick of myself. And i know my boyfriend has about had it with me. I dont want this ra crap. I dont want it any more, they can have it back. Im sick of the side effects , the pain, just every thing!! Any suggestions on what to do? i feel as if im stuck.

Kim

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Answers (2)

Lene Andersen, Health Guide

11/ 5/09 10:50am

You're having a completely normal reaction to an unreasonable situation. Being diagnosed with a chronic illness is hard to adjust to it is quite common to spend a good part of the first year (and on and off in the future) basically stomping your feet, yelling I don't wanna.unfortunately, you don't have a choice and there will come a time when you get up one day and instead of having a temper tantrum, you decide to learn to live with it (by the way, I'm not being condescending when I use the term temper tantrum - over the years I've learned that this phrase really is the best way to describe my feelings when RA pushes me up against the wall).

I'd recommend you check out a book called The First Year with Rheumatoid Arthritis - that link will take you to a post with a review of the book and interview of its author and it's an incredibly helpful source of information. You may also want to check out a post called 5 things to do for the newly diagnosed for suggestions on how to make adapting to the new situation more bearable, as well as our section for the newly diagnosed. I would definitely recommend counseling - see if you can find someone who specializes in cognitive therapy, as it can be particularly helpful in learning how to deal with a chronic illness.

Are you on prednisone? Some people find it really alters their moods, making them... well, incredibly bitchy. If you're on prednisone, you may want to talk to your doctor about alternatives. Living well with this disease takes focus and an ability to find hope and if prednisone is obscuring that, that will become more difficult.

and hang in there. It gets easier.

l3true2u

11/ 5/09 2:16pm

Lene

Thanks lots for your comment! Im deff. going to look into the book that you mentioned. Ive been wanting to seek counsling, but uncertin of where to go around my area. To answer your ? about the prednison. Yes iam on it, and lots of it. The doctor has been trying to get my amount down, but i flair right back up. Im soon to be starting enbral, soo im keep my fingers crossed that it works for me :) thanks again!!

Kim

l3true2u

11/ 5/09 2:17pm

btw when you say temper tantrum... its soo true thats exactly what it is lol

tonichick73

11/ 3/09 7:04am

hi there

i know exactly how your feeling im 2 years in with ra and 6 months with fibromyalgia its hard for people to understand even when u tell them i think they assume oh your on drugs u must be better but the side effects are crap i know im away to start treatment 8 i turn in to a complete cow with my husband and kids and i know he doesnt know what to say there is help though. i dont know where u live but alot of area do have groups o go to one here in angus the folk may be older than me but they still know how u feel. there is no magic one but speakin to people in the same situation does help because they know how u feel. i am goin to see a psychologist through a pain clinic i go to they are great as well you can be reffered by your gp its about developing copin strategies perhaps gettin your boyfriend to go with u to understand how your feelin i still find it difficult and be so miserable but your entitled to feel that way its still early days and it takes a while. i have a reallly great rheumatology nurse who i can have a good moan to as well xx

Q: Im so MISERABLE!!

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