Wednesday, September 01, 2010 Proud Army Wife! asks

Q: Rheumatoid nodules on both feet removed but negative blood tests???

I had two lumps removed from my feet August 5th. The lab work came back and showed that they were rheumatoid nodules on the 19th. My blood work I had done on the 23rd were negative for RA. So what does that mean? Could I still have it or am I in the clear??? Im 22 and not sure what to do. I do have weak hands and feet and always have. I also on occasion experience pain in my bones in sometimes my legs and upper arm. These bone pains have been shrugged off by all my doctors quickly. So I feel crazy! What to do and think!!! Any help or advice please.
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Answers (4)
Lene Andersen, Health Guide
9/ 7/10 1:01pm

Unfortunately, it is quite possible you have RA. Approximately 20% of people with RA are what is called seronegative, which means their blood tests show negative for the disease. It sounds as if you may be one of them. You can read more about blood test, including seronegative RA, in our post about lab results and we also have a terrific post about nodules.

 

Do you have a rheumatologist? If not, get one fast and if at all possible, find a good one. If you do have RA, it's important to be treated early to prevent damage to your joints that can affect you mobility in the future. Check out our area about the basics of RA for more information about the disease - the more information you have, the more empowered you'll be. You may also want to check out my post on being a good self advocate, which can be necessary as you navigate the medical system. We also have an area for the newly diagnosed with posts on how RA can affect the different areas in your life that may be of help to you. And lastly, before I completely overwhelm you with the links, I'd recommend you pick up a book called The First Year with Rheumatoid Arthritis - it's a terrific resource and learning tool that can help you feel much less lost and begin to get back in control of your life.

 

I'm glad you found the site. It's a wonderful community with lots of helpful information and many supportive users who can help see you through this (and I don't just say that because I'm Community Leader of the site). When you feel up to it, you may want to introduce yourself in a SharePost (click the Share Your Story button halfway down the front page of MyRACentral), tell us a little bit about yourself in general and about your introduction to RA.

I've had RA for over 40 years and although it does affect your life and sometimes tend to derail it, it is quite possible to live well with the disease. Hang in there. It gets easier.

 

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Lene Andersen, Health Guide
9/ 7/10 1:03pm

Unfortunately, it is quite possible you have RA. Approximately 20% of people with RA are what is called seronegative, which means their blood tests show negative for the disease. It sounds as if you may be one of them. You can read more about blood test, including seronegative RA, in our post about lab results and we also have a terrific post about nodules.

 

Do you have a rheumatologist? If not, get one fast and if at all possible, find a good one. If you do have RA, it's important to be treated early to prevent damage to your joints that can affect you mobility in the future. Check out our area about the basics of RA for more information about the disease - the more information you have, the more empowered you'll be. You may also want to check out my post on being a good self advocate, which can be necessary as you navigate the medical system. We also have an area for the newly diagnosed with posts on how RA can affect the different areas in your life that may be of help to you. And lastly, before I completely overwhelm you with the links, I'd recommend you pick up a book called The First Year with Rheumatoid Arthritis - it's a terrific resource and learning tool that can help you feel much less lost and begin to get back in control of your life.

 

I'm glad you found the site. It's a wonderful community with lots of helpful information and many supportive users who can help see you through this (and I don't just say that because I'm Community Leader of the site). When you feel up to it, you may want to introduce yourself in a SharePost (click the Share Your Story button halfway down the front page of MyRACentral), tell us a little bit about yourself in general and about your introduction to RA.

I've had RA for over 40 years and although it does affect your life and sometimes tend to derail it, it is quite possible to live well with the disease. Hang in there. It gets easier.

 

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12/ 8/10 2:18pm

I'm one of the sero-negative people Lene talks about. I have RA, but nothing shows in my bloodwork that says I have RA. My Rheumatologist diagnosed me by listening to me describe my symptoms and doing an exam of my joints.

If you have nodules, you probably have RA, but are sero-negative. Consult a Rheumatologist.

Good luck!

Amy

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12/ 8/10 8:11pm

I am another of those that Lene mentioned. I have Rheumatoid Arthritis but I have negative RF factor. So I get strange looks for two reasons since I have RA. #1 is I am a male and #2 is I am seronegative. 

 

Just keep your head up and know their is support out there for all of us who have this cross to bear. It has changed my life and not all for bad. If you need any information about seronegative Rheumatoid arthritis let me know I have a good deal of info from different specialist. 

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By Proud Army Wife!— Last Modified: 01/16/11, First Published: 09/01/10