Thursday, April 24, 2008 My Mom asks

Q: My Mom has RA - Where is the best treatment center in the US?

Mom has had RA for years, she was having Rimicaid infusions, however got histoplasmosis, almost dies, was in hospital for 3 weeks, now is on meds for histo. the rest of her life, due to this she can't take any of the really good drugs because they weaken her immune system, but she is on several drugs + prednisone & has woke up sick to her stomach for about 2 months, apprx. 5 weeks ago RA started in right hand, moved to shoulder, moved to hip, moved to back & now moved to left hand & still having problems with her hip. Rhematologist just told her to increase her prednisone which Mom didn't do due to the side effects & told her she could also take some tylenol. Please help me help her, she has no quality of life, always waking up sick to her stomach, always in some pain, now having severe pain & inflamation moving around. She has never been this bad, it seems to just keep getting worst. She has already had a mini-stroke & heart attack. I really need to find the best doctor that can do more than doctors she has seen in the past. Also has anyone heard of any natural remedies that would help?

Thanks so much!!

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Answers (9)
Hollybgroovin, Health Guide
4/25/08 10:01am

I am so sorry to hear about all the problems your mother has been having!  I hope for relief for her soon.  As far as some alternative medications or therapies here is a link that might help

http://www.healthcentral.com/rheumatoid-arthritis/c/53/9069/medicine/

And as far as finding someone who is willing to help her, have you tried contacting the arthritis foundation?  They can offer the resources you need to find a rheumatologist who may specialize in helping someone in your mothers condition.  I hope all goes well with her and pray that she finds relief soon.  Good luck, and best wishes!

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JB, Editor
4/24/08 10:41am

It may take considerable research to find the "best" treatment center in the U.S., but here are a few places that you might consider:

 

The Arthritis Center at Johns Hopkins, Baltimore Maryland

 

The Mayo Clinic Rheumatology Center, various locations

 

These places may also be able to recommend specialists and treatment centers closest to you, so ask around. I also suggest calling the Arthritis Foundation to ask for recommendations.

 

Joy B.

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4/29/08 9:20pm

Hi.

I have RA for almost 2 years. I use tylenol or an anti-inflammatory  on occasion. 

 

I am not taking any other meds for my RA. I have it in most of my joints. I do eat a very limited diet. Vegies and fish. And try to drink a lot of water. I do eat fruit. 

 

I recently met someone who cured  her RA using lecithin and i take 1-2 teaspoons of granulated organic soy lecithin in my salad each day.

 

I cannot eat wheat, potato, most nuts, bananas, tomato, tofu, soy sauce, rice. And chocolate is also on my "hit list". They all cause flares. You eat the food and it's fine. You eat it a second time and the antibodies the body made the first time you ate it cause a flare. That food now goes on the hit list. It comes under the subject of leaky gut and explains why foods are troublesome.

 

Have your mom do an elimination diet or as I did just go to a very simple organic raw foods diet with fish.

 

Look at

Hunter-Gatherers diet.          www.frot.co.nz/dietnet/reviews/mcferran08_hg.htm

The water cure.                   http://www.naturalnews.com/Report_water_cure_0.html

EFT free manual to download and subscribe to newsletter

                                       http://www.emofree.com/

 

There are lots of supplements for RA but I actually got the most benefit from eating simple organic foods. I found that most supplements worked for a day or two and then didn't. I surmised that my immune system was out of control. So things calmed down when I cut out offending foods.

 

Magnesium Aspertate with or without potasium aspertate capsules helped with pain in my muscles. 1-2 capsules. gave relief within minutes

 

I used EFT to heal myself of the fatigue associated with the RA.

 

Make fresh veg juices 

add Whole Leaf Aloe Vera juice, Green barley powder, Arthrid to the juice.

and NO microwaved food! not even water!

 

I still have pain in my joints but it is far better than it was a year ago. I believe I can get it to go completely into remission.

 

Start reading and get back to me with your questions.

I have more suggestions if you need them. 

 

Sharon

sharonbgood@mac.com

 

 

 

 

 

 

 

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6/19/08 7:47pm

The first thing your mother should do is get a doctor who is more concientious about addressing your mother's problems. I have psoriatic arthritis and it took me over a year before I found a doctor to make my myriad of symptoms serious, diagnose me and work WITH me to develop a way to treat my specific symptoms. You should feel your medical provider is working in partnership with you--not treat you like a number of $. Don't be afraid to tell him/her you do not feel your needs are being adequately addressed.

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7/20/09 10:37pm

How much water does she drink... or drank before the symptoms started to show? Read: 'Your Body's Many Cries for Water'

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11/ 2/09 3:14pm

Im trying to cope with the same thing, my mum suffers from RA to and is almost imobile and like your mum it is getting worse and she has only had it for a small amount of years but the inflamitory is almost everywhere now. None of her treatments are working and have severe side effects, she caught flu one christmas and nearlly died. She has tried many natural remedies to try and reduce her pain for example exercising, taking long baths, cod liver oils, regular vitimans, lots of sleep. Maybe this is helping her to become more mobile but how would we know unless she stopped doing all that? Maybe your mum could try some of these things that is of course if she dosn't do already but I would say swimming helps her the most. And one excellent cure that dosn't last very long is going on holiday as humidity really helps loosen up the joints. I really do hope she gets better soon and make sure you look after yourself aswell as it really does affect you to but I know how hard it is when you feel so helpless for them and just want them to be normal and have a good quality life because it seems impossible and they have no aspirations bar getting better.

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11/ 2/09 3:14pm

Im trying to cope with the same thing, my mum suffers from RA to and is almost imobile and like your mum it is getting worse and she has only had it for a small amount of years but the inflamitory is almost everywhere now. None of her treatments are working and have severe side effects, she caught flu one christmas and nearlly died. She has tried many natural remedies to try and reduce her pain for example exercising, taking long baths, cod liver oils, regular vitimans, lots of sleep. Maybe this is helping her to become more mobile but how would we know unless she stopped doing all that? Maybe your mum could try some of these things that is of course if she dosn't do already but I would say swimming helps her the most. And one excellent cure that dosn't last very long is going on holiday as humidity really helps loosen up the joints. I really do hope she gets better soon and make sure you look after yourself aswell as it really does affect you to but I know how hard it is when you feel so helpless for them and just want them to be normal and have a good quality life because it seems impossible and they have no aspirations bar getting better.

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7/20/10 3:27pm

I have RA and have for the last 10 or more years, I have been on predisone, plaquinell, methotrexate, and embrell.  These medications just simply were not working for me, they made me worse.  So then I would take pain pills and muscle relaxers to help which in turn made me less mobile.  I have been on a raw food diet for the last 3 months and off my medication and I have seen great sucess.  I still hurt at times but nothing like before, I don't have to take a pain medication to deal with it.  I am like many sick of going to the doctor only to be put on more and more medication.  I also have been making wheatgrass juice and I consume 6 ounces daily, this give me energy which helps keep me mobile.  I am only a person out of many trying to heal what I have done to myself over many years.  I am 52 years old and want quality over quanity for the rest of my life.  I have found that a raw diet is the only thing that makes me feel human.

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3/24/12 12:39am

I hope your Mom is doing better after 4 years of your message. I am 48 years old mom with the same problem and at the same level. I understand perfectly what she is going through. My quality of life is less than nothing. My skin, hands and feet look terrible. As I am writing my pains don't let me stand up and barely write. I have gone through everything from a Shaman in Venezuela to the supposedely the best Doctors with biological infusions, and feel that I am falling like a plane. I came accross with this blog in my endless pursue of a little help. A little will mean a lot to me. I have been in a raw diet and veg juices for a long time, and it seems at times they work but something triggers the illness to an impossible to bear level. I recently started a diet with a product called "isagenix" that did magic to a person I know (this product is sold in multilevel). Well I believe that the chocolate in it is killing me. By the way my problems are not only pain and swollen bones (even in my head) that at their peak convert me in the monster of the black lagoon, but also they come along with a rash called "cold urticharia". The only fortune is that I have not suffered a heart attack or strokes, but recently I started to feel numbness in my arm and face. MRI has been done and nothing.

My husband believes that i need to go somewhere to spend 3 weeks dedicated to my RA, but we have not found any place here, Mexico or anywhere. Somebody said find yourself a contious doctor. Where, please!!!

My name is Nora and time is at essence here. Much thanks in advance to all the kind persons that respond this call.

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By My Mom— Last Modified: 06/13/12, First Published: 04/24/08