Monday, September 01, 2014

Sunday, May 30, 2010 YoungEDSDavid, Community Member, asks

Q: Which did I enherit? EDS, Arthritis, or both?

I have Athritis on my dad's side, and it was crippling for that family member. I have EDS (Ehlers Danlos Syndrome). I think back and I had many many people tell me that cracking my knuckles will cause Arthritis... Yet recently I've had it bad in the joints I never cracked! I'm wondering if I got it because of the Athritis on my dad's side, or from the EDS? Compared to the pain I deal with daily and the worst pains I've had... it isn't much. But mind you if you were normal and didn't have this pain in your worst night mares... you'd weep. That bad. And I've learned how to hide it (all but my feet and knee. Ibuprophen helps feet dislocations... doesn't dent the knee pain. I have another post on that one...) So could it be caused from the EDS, or did I enherit it, or both?

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Answers (3)
Hope, Community Member
5/30/10 9:10am

I don't know about the eds but the arthritis you did enheret.  I got mine from my dad you got it from his mom and member from his fathers family.  Cracking your knuckels does not give you arthritis.  My gramma always told me that, but it does not.  I have asked several drs.

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YoungEDSDavid, Community Member
6/ 1/10 11:01am

Well I know EDS is inherited but I mostly meant could it have caused the athritis or could I have the athritis from my dad's side and the EDS amplified it... Most docs I go to can't grasp it... or they never heard of EDS and don't know the pain I've gone through and take it lightly, even though I say my joints pop out regularly.

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Ellen C, Community Member
5/31/10 10:50am

That's a new one.  EDS I never heard of it and I thought I had heard of everything in this family of diseases.  Is it an autoimmune or an arthritis disease?

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YoungEDSDavid, Community Member
6/ 1/10 10:59am

Ehlers Danlos Syndrome is where there's a colligin difficency. My joints are extremely loose and my skin is elastic. Could the joint dislocations have caused the Arthritis or could I have enherited it, or could I have a double whammy? Is the main thing I'm wondering.

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Ellen C, Community Member
6/ 1/10 11:55am

My joints are to tight and they hate to move.  If only I could give you a little of what I have and you could give me a little of what you have we would both feel better. Sorry I can't be any help.

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llaird, Community Member
6/27/11 11:14am

Well do think that...I have both and even though I hate to move from the RA I have to worry constantly about my knees, hips and ankles popping out. The pain means muscle and tendon weakness. Then to add to the cake joint pain. I hear under normal circumstances to hypermobility is wonderful. I will be honset as a child it helped me with sports. I regret it and don't want it today. I have figured out though life truly is a box of chocolates. Hang in there...

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llaird, Community Member
6/27/11 11:15am

Well don't think that...I have both and even though I hate to move from the RA I have to worry constantly about my knees, hips and ankles popping out. The pain means muscle and tendon weakness. Then to add to the cake joint pain. I hear under normal circumstances to hypermobility is wonderful. I will be honset as a child it helped me with sports. I regret it and don't want it today. I have figured out though life truly is a box of chocolates. Hang in there...

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Lene Andersen, Health Guide
6/ 2/10 12:20pm

to be honest, I don't know enough about EDS to tell you one way or another. As well, I can't tell you whether you have RA - you need to see a doctor.  is there a teaching hospital in your area? Sometimes, specialists at teaching hospitals are more used to thinking outside the box and they have more resources within that hospital to consult with, so I'd recommend that if at all possible, you get a referral to someone at such a location.

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llaird, Community Member
6/29/11 11:01am

I had asked the question was it possible to have both?.I am dxed sero-negative RA at this point and on the way the way to my EDS dx. I also crack my knuckles. I have found though when I hear air noise and NOT the cracking noise my joint in question is in trouble and will be hurting very shortly. I know it almost seems impossible to be stiff and in pain and limber..It is not any fun. It seems my rheumy is mainly interested in the RA. I am so very sure though the EDS has very much impacted my tolerance of the RA symptoms. Hope you have a good rheumy because that seems to be paramount to all.Undecided

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By YoungEDSDavid, Community Member— Last Modified: 06/29/11, First Published: 05/30/10