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Hello,
TGh
I've only been seeing a rheumy for a year now. Before that, my primary docs decided to play specialist and messed me up more. I didn't trust doctors, so I didn't go to one for at least a year. The pain was so bad, I just drank a lot. Not good but when in that much pain, one does anything to get out of it.
I'm on remicade now but couldn't do methortrexate because my body hates it. I get so sick and it lasts for days. I take asulfazine as I had inflmatorry bowel, which the primaries calld 'gas". Not cool for a woman to look pregnant. The meds took a couple months to work but they did. Not only that, they took away the sores I would get in my mouth each month. A lot of my symptoms mimic other autoimmune diseases, like lupus. I have also tested positive for ms, which my mom and her mom both had. I get scared because it says not to give remicade to patients with ms. All I know is that I brought a radiology report in showing the lesions in my brain and the diagnosis from the radiologist.
I didn't have a positve RA antibody in my blood but from what I understand, 40% of people don't have it. The only thing that shows up is whatever leads them to believe I have bad inflammation. My hips feel like a nail gun is going into them. My fingers are a mess but my back, that low joint, sacral(?) don't know the exact spelling. I swell up so badly in my lower back and do get injections of steroids there. OUCH. Just last visit, I got a shot in my hip. Oh, I'll have to think hard about doing that again.
Because my RA seems to revolve around my estrogen flux, it seems I'm always in a flare. Ok, I do have some good days and am happy for them but then I get depressed because tomorrow might suck.
Warm Regards,
Kelley