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Hello, TGh I've only been seeing a rheumy for a year now.  Before that, my primary docs decided to play specialist and messed me up more.  I didn't trust doctors, so I didn't go to one for at least a year.  The pain was so bad, I just drank a lot.  Not good but when in that much pain, one does anything to get out of it.   I'm on remicade now but couldn't do methortrexate because my body hates it.  I get so sick and it lasts for days.  I take asulfazine as I had inflmatorry bowel, which the primaries calld 'gas".  Not cool for a woman to look pregnant.  The meds took a couple months to work but they did.   Not only that, they took away the sores I would get in my mouth each month.   A lot of my symptoms mimic other autoimmune diseases, like lupus.  I have also tested positive for ms, which my mom and her mom both had.  I  get scared because it says not to give remicade to patients with ms.  All I know is that I brought a radiology report in showing the lesions in my brain and the diagnosis from the radiologist.    I didn't have a positve RA antibody in my blood but from what I understand, 40% of people don't have it.  The only thing that shows up is whatever leads them to believe I have bad inflammation.  My hips feel like a nail gun is going into them.  My fingers are a mess but my back, that low joint, sacral(?) don't know the exact spelling.  I swell up so badly in my lower back and do get injections of steroids there. OUCH.  Just last visit, I got a shot in my hip.  Oh, I'll have to think hard about doing that again.   Because my RA seems to revolve around my estrogen flux, it seems I'm always in a flare.   Ok, I do have some good days and am happy for them but then I get depressed because tomorrow might suck.   Warm Regards, Kelley      
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