Monday, October 20, 2014

Thursday, July 24, 2008 yoli, Community Member, asks

Q: jaw pain

i've notice lately when i eat; my jaw hurst like crazy; does this mean that the ra has effected my jaw...sometimes the pain is unbearable

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Answers (7)
Lene Andersen, Health Guide
7/26/08 1:52pm

Yes, RA can affect the jaw joints and the impact is especially noticeable when eating or at the dentist. And there's nothing like it - with other joints, you can sometimes sort of mentally isolate the pain to that area of the body and be able to more or less get on with your day. Pain in the jaw, on the other hand, seems to affect everything and in my experience, has a more drastic impact on your mood. Try eating softer foods - e.g., using ground meat (hamburger instead of steak), steamed vegetables instead of raw, cut your food in smaller pieces that are easier to chew, don't eat "tall" food where you have to open your jaw very wide to take a bite. Soups, stews and stir fries with rice are easier on the jaw, as well. Sometimes, a bite plane also helps - it's a protective guard for your teeth made by your dentist and is worn at night to protect your jaw in case you clench or grind your teeth when you sleep. If your RA is on the move into additional joints like the jaw, you may also want to talk to your rheumatologist regarding options for controlling the progression.

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Lauryn, Community Member
3/21/14 4:06pm
I was taking medication for bipolar and while on it I developed ra I am so unhappy about this. Do you believe ra is caused by medications?? Reply
Lene Andersen, Health Guide
3/21/14 7:53pm

I'm sorry your having a rough time. Being bipolar and having RA on top of it is a bit much.

Rheumatoid arthritis is an autoimmune disease. As other autoimmune diseases, it's a bit of a mystery in terms of original cause. There's increasing evidence that certain things can trigger the immune response that leads to RA in people who are genetically predisposed to develop the disease. Some of these factors include smoking, trauma and perhaps certain bacteria in the gut. Although much is still not known about what causes RA, I have never seen medication mentioned anywhere. Keep in mind that even though there may be a variety of triggers that can potentially lead to the disease, individuals have to be genetically predisposed to RA in order for these triggers to "flip the switch" that gets the process started.

Although having RA is never something anyone would choose, this time is actually a pretty good time to have it. There are many more medications than ever before and they can now help people with RA to actually go into remission. This never happened when I grew up with the disease. It is these effective new medications have changed treatment approaches and rheumatologist now treat RA early and aggressively, as it increases your chances of going into remission.

Check out our area for the new to RA to see posts on many aspects of living well with RA. You'll likely need some time to adjust and to find a medication that works for you, but I promise you — living a good life with this disease is possible.

 

If you have any other questions, don't hesitate to ask. We're here to help you get through this.

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Lauryn, Community Member
3/24/14 10:14pm
Thank you so much for taking the time to respond to me also. I wanted to make a point. While reading the side effects of the Meds I have taken some of them said that they can lower my white blood cell count. This is why I think the increased risk of getting the ra occurred or could occur. Does theft seem possible? Bc if this is the cause then you can get infections easier. You need your white blood cells. So my joints were effected possibly by the Meds drying my me out and making the body get water retention in return putting weight on my small frame. I was also no able to go to the restroom on the Meds and infection could have spread to the joint? Idk but all of the ideas I have kinda make sense. Reply
Twinkisses4me, Community Member
7/26/08 9:54am

I wish I could answer that for you.  I have the same pain and wondered the same thing.  Best of luck.

 

Marly

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Kim, Community Member
7/26/08 1:11pm

I asked my dentist if my RA was affecting my jaw.  I was having trouble keeping my mouth open wide enough for him and afterwards I had more pain than usual.  He told me that, yes, RA has very likely affected my jaw.  He has to give me more frequent breaks than he would others with a healthy jaw.  Hope this helps!

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AmyAria, Community Member
8/ 7/08 10:20am

Hey Yoli, I've got another idea for you too.  A few years back I had been having jaw "discomfort" in the morning, I wouldn't describe mine as pain though.  I don't really think mine is RA related cuz I'm pretty sure it comes from my tendancy to clench my teeth.  When I am tense or upset my husband can always tell cuz it all goes right to my jaws.  Dentist also noticed unusual wear in my teeth so apparently I am a night time tooth grinder.  I think this is why my jaw felt funny in the a.m.  He gave me a bite splint.  It's just this hard plastic thing I sleep with that keeps me from grinding.  It took some getting used to but now I can't sleep with out it.  I really LOVE it!  Now it is true from what I've read that RA can effect your jaws, however RA or no it might be worth asking the dentist if this might help you.  What do you think?  ....maybe?

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AmyAria, Community Member
8/ 7/08 10:22am

Oh duh!  I see if I had read through all of Lene's comments she already suggested this.  Durrr....!  Once again, damn you Lene!  Wink

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keri, Community Member
11/20/10 11:52am

i have r.a. and it is in my jaw too. the noise my jaw makes when i eat is literally driving me crazy. the pain is intolerable. i am going to see an ENT to see if he can do anything. my dr also said i may need to visit an oral surgeon. we shall see...i am really hoping for something to ease the pain...i will even take a cortisone injection if they let me, but i don't think they will.

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Beck, Community Member
11/28/10 12:22am

I had my first jaw pain this evening.  I can't believe how much pain there was and how suddenly it came about.  I think I'm experiencing a major flare-up.  I'm even on prednisone for my right hand/wrist!  My next Remicade is in two weeks (can't wait-it's been a God send!) so I'll talk to my new doc about the newest symptoms.

 

I hope the new doc listens to me.  The other just 'ah-ha'd me.  Everyone else getting IV kept going on about how wonderful he was...I never saw it.

 

Oh well-I took a Vicodan, so the pain is gone now, but it really hurt...about an 8.  I just don't understand how I can have so much pain in a new location so suddenly while on prednisone.  I'm kind of scared that the RA is gaining speed.  I was dx 4.5 years ago, so maybe this is the course of the disease for me.

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keri, Community Member
11/28/10 2:03pm

I know what you mean. I was diagnosed almost 4 years ago and it has been a severe progression. I am on Rituxan and methotrexate...Remicade worked for a while, never really stopped my symptoms. So I am trying this. I have had it twice now, the 3rd time will be in December, but I think we are going to switch to something else because this time around, it didn't do what it did before.

Good luck to you. Please keep in touch. It is so nice to talk with another who is in the same boat as I am. My ent appt isn't until the 16th!!!! I am dying!!!  :)   Have a good week!

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Beck, Community Member
11/30/10 10:41pm

Now I have something new!  Instead of the killer pain on one side of my jaw, my whole lower jaw aches so bad.  I don't want to talk...I've been eating soup and Cream of Wheat because just the thought of food makes me sad.  :(

 

The pain is the who lower jaw down to where my neck connects to my body.  It's not really pain...it's ache.  It cracks me up when a doctor asks if something "hurts" and I say, "No, it's not pain, it 'aches' or it is 'sore' or 'I don't like it'" and they look at me like I'm a child.  I guess I'll take another pain med and go to bed AGAIN without spending time with my family.

 

That's the part that is the worst-missing out on family time.  13 more days to Remicade.  Tick...tick...tick

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Beck, Community Member
11/30/10 10:46pm

I just realized I didn't respond to you.  I'm so sorry...how selfish!  I am sorry about your suffering as well.  :(

 

How horrible to find a kindred soul and then try to suck the life out of it by vomiting all you have bottled up inside instead of listening and finding ways to help each other.  I guess that's what happens when you feel all alone then find someone that really understands.

 

Let's have a great week and see how it goes for us following treatment.

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keri, Community Member
12/ 1/10 1:12am

you are too funny! I totally get everything you are saying! I saw my rheumatologist today and she put me on daily prednisone (10mg/day) for 2 weeks, then 1 1/2 for 2 more to get me through til my rituxan infusion. hopefully if insurance goes through smoothly (usually it does) i will be getting it around dec. 20! I am trying a new pain med too, tramadol. i have had two now today, and pain seems to be on hold and i don't have the "out of it" feeling I get with vicodin. 

take care and talk to you soon!

btw, are you male or female? i am a 42 year old female.

Thanks for listening.

Keri :)

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Beck, Community Member
12/15/10 9:34pm

I'm 50, female and fantastic!  I had my Remicade Monday, so I'm feeling pretty good.  The girls in the office are making fun of me because they think I type fast.  I do marketing so there's a lot of up and down, packing, unpacking, reports, smiling when you really don't feel like it...

 

I hope you're doing o.k.  I'm sure your insurance won't be a problem if there haven't been any issues in the past.  I had a problem one time when my company changed insurances.  It made me 6 weeks late because the new insurance company wanted all my records.  I had to go to the CEO of my company to get it all worked out. 

 

I'm very fortunate.  I have a fantastic support system at home and at work.  Are you able to work outside of home?  I can't do anything at home because I'm so wiped out.  Although I am 50, female and fantastic, I'm not Wonder Woman!  :)

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keri, Community Member
12/16/10 7:39pm

Hi! Glad to hear you got your Remicade and it is working. I was on that for a couple of years and liked it.

Had part 1 of 2 Rituxan and went fine. Saw the ENT for the jaw pain and got a referral to an oral surgeon. The prednisone I am on is helping a lot, but that will soon be over. 

I am feeling pretty good. I am a kindergarten teacher, so I am exhausted when I come home. I can't do anything either...so glad to be on winter break after tomorrow! My husband has been wonderful and I am lucky my children are older. I can't imagine if my diagnosis had come 5-10 years eariler!!!! 

Have a fabulous weekend!

 

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terrirwoods, Community Member
9/ 2/11 10:50am

Hi Girls!! I'm not sure if you're still on here, but I'm a 48 year old female who was diagnosed with RA and Fibromyalsia this year.  I'm unable to work outside of the home, so I opted for school.  Hopefully this will lead to a job at home.  Would love for you to respond.  A support system is a necessity!

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keri, Community Member
3/21/14 9:22pm

Hi there! Welcome to the wonderful, wonderful world according to your RA!!! :) lol

I was diagnosed in Feb 2007 and thankfully can still work. I do use up all of my sick days and them some though.

Been on Xeljanz since July and it is working very well! The continuous medicine (one pill twice a day) keeps a steady amount in my system. There is no "wear out" period like with the infusions.

Your turn!

Keri :)

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By yoli, Community Member— Last Modified: 03/24/14, First Published: 07/24/08