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Wednesday, November, 25, 2009
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I am so sorry to hear that she is being discouraged.  I have the "red eyes" and am on prednisone drops for the eyes.  Some days they look better.    Yesterday, a blood vessel burst and I had additional ugly redness.  I noticed I was weak and tired before it happened and felt flu like symptoms.  I am taking Humira, prednisone and was on methotrexate but stopped because my hair was falling out and I was nauseous.  But methotrexate does help and it is cheap so maybe she can find someone to rx that.    In January, I also had bad weakness and couldn't lift my head off the pillow or comb my hair or barely walk.  Now I am up walking and doing daily activities again.   I can hold my grandchild. Your sister needs to search for the best available care and drugs she can get in India.  I will pray for her as I know from my friends who are in US and grew up in India that it is harder there.  Yes, get your sister to best eye care and rheum available. Lisa
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