Thursday, June 05, 2008 mommc2, Community Member, asks

Q: Hi! I am wondering if anyone else with RA experience painful hips during menstrual cycle?

I was diagnosed about 6 months ago - after several false diagnoses.  (One doctor told me I just use my hands too much at work.)  I don't get the pain in my hips every month, but about every 3rd month and it's only been going on for about the last 9 mos. or year.  My rheumy doesn't think it's related at all, but it started about the time I noticed the pain in my hands just wasn't going away anymore.

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Answers (9)
Lene Andersen, Health Guide
6/ 5/08 7:42pm

 

Some women experience an increase in symptoms (swelling in the joints, pain) during PMS, so it's possible it's related.  Do you have arthritis in your hips?  Do your other menstrual cycle symptoms vary, as well?  Is something else going on every three months that might explain it?  The longer you have your disease, the better you get at recognizing patterns of symptoms, so I tend to trust my gut on things like that.  Unless it is severe enough that you want it to be treated, you can ask yourself whether it is important that you doctor agrees with you.    However, if you haven't had a physical in a while, it might be a good idea to get one, just to rule out anything else.

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Madeline Concepcion, Community Member
6/ 6/08 10:29pm

I was diagnosed on April 29th of this year, I just started having pain on my hips this month when I was on my menstrual, and I did think that maybe it has to do with the RA because I never had it before. I do have an appt. on Tues. with my RA doc. and that is one of the questions I have written down to ask her.

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mommc2, Community Member
6/ 9/08 10:40am

Thanks ladies!  I thought I was going crazy!  Especially since I'm at the 3 month mark again and my hips feel like they are going to explode.  My husband doesn't get it!  I hate that I don't have any real outward symptoms!   It's not like you need to wear a cast or anything!  The only joints that have shown any real swelling so far are my hands.

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Hollybgroovin, Health Guide
6/10/08 12:02pm

Painful hips affect everything don't they.  You can't get out of bed, you cant hardly get up and down from the toilet, and you can't hardly walk.  I too have an increase in pain and inflammation when I am PMSing and during my menstruation cycle.  My rheumy told me not too long ago that he believes that there is a connection with out hormones and oujr flares and that in fact they are doing studies the connection of hormomes during menstruation and after childbirth.  I think a lot of us can identify with you on this one!  Has your rheumy done any xrays to see if there has been any damage to your hips?  My old rheumatologist that I was having "sympathy pains" from the pain in other parts of my body.  Then when I started seeing my new rheumatologist he did xrays immediately and I got the news that I needed total hip replacement surgery.  The fact is that RA affects different people, well, differently.  And even if you just have pain in your hands it doesn't mean that it's not affecting your hips as well.  I try to remind people all the time that RA can do damage even when there is no pain present.  Take it easy, keep your head up, and I hope for relief for you soon!  Good luck and best wishes!

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tril2win, Community Member
9/ 1/08 9:28pm

No pain in my hips.  My symptoms do tend to worsen the week before my period.

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EWMAMA, Community Member
4/27/09 10:31pm

Let me tell ya this, I have been looking for 23 years now for a DR who believes that what I tell them is true. When I have my period, my entire body explodes! The heavier I bleed the worse the RA pain is. I was diganosed 23 years ago, it took DR's 8 months to actually find out it was RA. NONE of the DR's I have EVER talked to has had any beliefe that the bleeding has any effect on the RA pain! I'm here to tell you ALL...THAT'S BS!

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Hope, Community Member
5/16/09 2:08am

I Was diagnosed with RA quite recently. Over a year ago a MD refused to follow up with my signs and symptoms, insisting that I hurt my shoulder at work. I have horrible left hip pain on a regular basis but it is magnified during my menstrual cycle. I am presently being treated with injectables by my rhumatologist.

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Ambra, Community Member
11/20/09 1:01pm

i think more MD's need to come visit this site and listen to what we have to say collectively as patients!

i too experience an increase in pain, inflammation, fatigue and genereally just feeling awful 1-2 weeks before my period and sometimes that lingers in the week following also.

i've mentioned it to my rheumy before and it's def on my list of things to bring up again at my next appt. :)

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Heidi, Community Member
5/27/10 1:36pm

I am on my period right now and I hurt incredibly in my hips. My hands started hurting so bad I couldn't even pick up a pen about two days ago and then I started my period today and my hands don't hurt as much. I defenitely think there is a correlation between our hormonal change during menstruation and RA symptoms.

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By mommc2, Community Member— Last Modified: 12/24/10, First Published: 06/05/08