What is "well managed"? I've had RA for 7 years and am on a lot of medication. The only thing that really helps is pred, and my Dr wants me off it. I was doing reasonably well at 5mg daily. I tapered off, started a new biologic, and flared like crazy, and had to go back on a higher dose. I understand why the pred isn't good -- side effects -- but I feel so horrible without it, I can barely function. I am on a new biologic for the past two months, but the results are the same as the last one. My Dr said to try it for six months and taper off the pred. I can't get off the pred as I am still in a lot of pain with a great amount of fatigue. That never went away. What should I do?
I am so, so tired of this disease. I am rf neg, and have not had much swelling -- just wicked stiffness and pain throughout my entire body. I walk every day, do not eat processed food or much meat, and an working at losing the extra 20 lbs that has hit since getting this disease. My bloodwork has been fine throughout the past 6 months when it is assumed by my Dr that the Remicade stopped working.
Thanks for any suggestions. I am really at my wits end in dealing with this -- I work full time and am a single person living alone. just keeping up with housework is tough, let alone do anything enjoyable. Not working isn't an option, and getting help w/ housework is (financially) not an option for me at this time.




