I have sjogrens disease and I wonder if it causes joint damage. I just started immuran and asked why I can't take one of the newer drugs like Humira and was told that since I showed no signs of RA I can't take any of the biologics. I have migratory pain, no joint swelling but I am still on 25mg of prednisone and can't reduce the amout because of severe pain, burning feet, wrists, knees, hands, ankles, and osteoarthritis in my neck. I started on 100mg of immuran and was told it will take 8wks for results and I am in very bad pain. I started on plaquenil in March, switched to methotrexate in June and this 2wks ago. This is going on too long. I have a new RA doc and wish see would have started new tests and been rediagnosed but she didn't and they are hard to come by in my town. I am in alot of pain and am looking for some help. This hunt for answers started Dec 26th 2008. I am wearing down FAST. Someone HELP!!!!!!!!! I might have something else but what????
Hi Sandra Marie,
I have RA, Psoriatic Arthritis and Sjogrens. Sjogrens CAN cause joint and organ damage. I am on Humira and Planquiel for the RA and PA and take Salagen for the Sjogrens. Are you on pain meds as well? Some RA docs wont prescribe them. Sounds to me like you have more going on than Sjogrens. Ask for more tests and a full exam. RA is only dx'd with a full exam and bloodwork. (I am sero neg). I can relate to the pain, my RA doc has no problem giving pain meds, I take Vicodin 10mg every 4hrs as needed, which means pretty much every 4 hrs! If your RA doc won't give you pain meds, and you can't find a better one, try a pain mgmt doc. Hope you feel better soon!
Brad
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My "new" doc won't give me Humira since I tested neg. for RA, I don't know what sero. neg. is but will be looking it up now. I do have osteoarthritris in my neck and maybe my back which is adding to my pain greatly. What I don't understand is the 6 vials of bloodwork and she shows me a half-sheet of blood report and mostly it is on vitamin D level. She tells me I have fibromyalgia and sjogrens and has already spent 20 mins. with me and has to move on to her next patient. I am getting vicodin from my GP but he wants to start cutting it back ASAP. I am on 25mg of prednisone and I try to cut back to 20mg for a few days but I am in so much pain I have to raise it back up. In my town, RA docs are booked until Feb. Thanks for the input. I will keep looking for more feedback. Sandi