So far I have been diagonsed with primary Sjogrens disease and I am being treated with imuran. I will not be put on any biologic med. because RA does not show up show that is the strongest medicine they will use and so far it is not helping. I am in alot of pain, body aches, 25mg of prednisone for 1 year now, joint pain, ankles, wrists, spine, neck, can't sleep, fatigue. My doctor is rude to me and another doctor in my area is just about out of the question. Anyone out there with similar disease?
11/ 2/09 11:05am
To be honest, I would encourage you to re-examine why another doctor is not an option. It's important that you and your doctor work together as a team to treat your illness and if your doctor is not stepping up, it's going to be a problem. You can try to fix the problem with your doctor by being very honest about your feelings and about what you need from him - check out this post on self advocacy for tips on how to reach doctors who aren't working with you.
I know that there are number of people on this site who have Sjogrens and you may want to try to ask your question again in a SharePost as they tend to get more traffic than individual questions in this area.
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By sandramarie— Last Modified: 10/27/10, First Published: 10/26/09
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I feel everything you feel including about doctors with the exception that I keep looking for one that will help. I am seeing my 4th one in 2 weeks. Its the last one here that specializes in sjogrens. But I really believe after reading and going to doctors for 2 years that they don't know what to do. I have developed autoimmune hepatitis from the sjogrens. I have cirrhosis and liver doctors are not very helpful either. They just can't help us. If this doctor doesn't work for me I am going to try John Hopkins..I can't get detailed information from experience patients but their websites seem to more up to date. Good luck and keep looking.
Frustrated in Pittsburgh